All news

Research Champion Wendy Mitchell

3 March 2023

Research Champion and Sunday Times best-selling author Wendy Mitchell was diagnosed with young onset dementia at the age of 58. Wendy, who was an NHS Manager for 20 years until 2015 recalls: “I was coming out of my office one day and I didn’t know who I was or who all the people around me […]

Happy 8th birthday to Join Dementia Research!

24 February 2023

Today marks 8 years since Join Dementia Research was launched to match volunteers with suitable dementia studies. Through Join Dementia Research, people can see what dementia research is taking place, both in their local area and across the UK. Here are just a few of the highlights we are celebrating from the past year: Join […]

Nine in ten people want to know their brain disease risk

20 February 2023

New research has revealed that 91 per cent of people would take a simple test to learn about their risk of developing a brain disease. The anonymous online study, ‘The Global Brain Health Survey’, involved more than 27,500 people worldwide and was led by the Norwegian Institute of Public Health in collaboration with the University […]

Dementia singing study seeks Nottinghamshire volunteers

14 December 2022

A new study in Nottinghamshire is seeking volunteers to form a singing group to study the benefits of singing for people with dementia.  University of Nottingham researchers are seeking 80 people with dementia and their carers to take part in the Preliminary Randomised Evaluation of Singing in Dementia (PRESIDE 2024) study, which is using Join […]

Join Dementia Research volunteers help discover Alzheimer’s drug lecanemab

1 December 2022

The findings of a research study that discovered a treatment for early stage Alzheimer’s disease have been hailed as “momentous” by Alzheimer’s Research UK.  The new treatment, lecanemab, is the first drug to slow cognitive decline in people with early signs of the condition. The CLARITY-AD study enrolled 1,795 patients with early-stage Alzheimer’s globally, including Join […]

Join Dementia Research reaches 60,000 volunteers

23 November 2022

More than 60,000 people across the UK have now signed up to Join Dementia Research to be informed of dementia studies they can take part in. Since the service began in 2015, a total of 61,639 people have signed up, with 69,515 enrolments into studies during this period. Professor John O’Brien, NIHR National Specialty Lead […]

Dementia during COVID-19 – the lived experience perspective

10 November 2022

A Scottish study which recruited participants through Join Dementia Research has published their findings on the effects of the adapted dementia diagnosis and consultation processes during the COVID-19 pandemic. The research has been co-produced by the University of Edinburgh and the Better Understanding Dementia Diagnosis (BUDDs) lived experience group, and funded by UK Research and […]

Investigating the impact of anti-inflammatory drugs on Alzheimer’s disease

18 October 2022

A research study exploring the impact specialist anti-inflammatory drugs have on Alzheimer’s disease symptoms is looking for volunteers in London, Plymouth, Guildford and Southampton. The EXploratory PLatform trial on Anti-INflammatory agents in Alzheimer’s Disease, or EXPLAIN-AD for short, will be evaluating the effectiveness and safety of anti-inflammatory agents on common Alzheimer’s symptoms – including memory, […]

Lecanemab – a potential new treatment for Alzheimer’s disease

28 September 2022

News that a potential treatment for early stage Alzheimer’s disease can slow cognitive decline is a significant development in dementia research. About the drug Lecanemab is an antibody that is designed to remove toxic beta-amyloid deposits; proteins that build up in the brains of people with Alzheimer’s disease. Following phase 3 clinical trials, pharmaceutical companies […]

Diabetes drug to be tested as a potential treatment for Alzheimer’s disease

7 September 2022

Clinical trials across England and Scotland are underway to investigate if an existing diabetes medicine can potentially work as a disease-modifying option for early-stage Alzheimer’s disease. Novo Nordisk is now working alongside Join Dementia Research to investigate if the medicine, known as semaglutide, could also benefit people living with early Alzheimer’s disease. What the study […]