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In any area of healthcare, the topic of end-of-life is very difficult. It’s hard to talk about for people with a diagnosis, their families and healthcare professionals. But it is important to discuss, particularly with people living with dementia. Research has shown that people who have had end-of-life care conversations early on have an improved […]

As 2024 draws to a close, we look back at some of the breakthroughs in dementia research and the achievements and milestones of the Join Dementia Research service.  More volunteers sign up to Join Dementia Research than previous year More than 80,000 volunteers have now signed up to Join Dementia Research since its inception in […]

Many anonymous online survey studies are seeking volunteers through Join Dementia Research. These studies are quick and easy to take part in. They provide important data to help further our understanding of dementia. Here are 2 studies currently taking place: MINDER (TIHM Technology Perceptions) People with dementia may have biases towards health technologies. This may […]

  Terry Quinn is a Professor of Cardiovascular Ageing at the University of Glasgow. He recently led a study, working with volunteers in the Join Dementia Research community. The aim was to investigate what activities of daily living are important to older adults.  They found that the existing tools and methods often used to measure […]

Last week it was announced that the dementia drug, donanemab, has been approved by the Medicines and Healthcare products Regulatory Agency (MHRA). This means it will be available under private prescription in the UK. However, it has been rejected by National Institute of Health and Care Excellence (NICE), so it will not be available on […]

Dimana Georgieva is the Programme Manager for a charity called Music for my Mind. The charity helps people with dementia to create free music playlists through their website. In this blog, she shares insights from their online study, ‘Generating and using personalised music playlists to improve behavioural and psychological symptoms in people with dementia: a […]

Last November, we invited Join Dementia Research volunteers to have their say and tell us about their experiences of the service by completing our annual survey. Feedback from our volunteers helps us to understand what we are doing well and enables us to identify areas for improvement. Engagement The annual survey was sent out to […]

To mark World Alzheimer’s Month, we’ve created a new animation to explain the Join Dementia Research service to the public and encourage even more people to sign up.  The 2-minute long video covers how to sign up, what happens after signing up, how the service works and the types of studies you can take part […]

News of the approval of the new Alzheimer’s drug has hit the headlines this week. Lecanemab has been approved by the MHRA, the UK’s regulator, but has been rejected by NICE so it will not be available on the NHS. Lecanemab is part of a new class of drugs that is emerging. It slows the […]

Despite not having dementia himself, David Batchelor from Leicester signed up to Join Dementia Research to help others with the condition. David’s health research journey began in 1962 when he took part in a study to treat his ruptured liver aged just 6 years old.  “Research saved my life” He said: “I was playing in […]