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Donanemab – an update

31 October 2024

Last week it was announced that the dementia drug, donanemab, has been approved by the Medicines and Healthcare products Regulatory Agency (MHRA). This means it will be available under private prescription in the UK. However, it has been rejected by National Institute of Health and Care Excellence (NICE), so it will not be available on […]

Blog: using music to help improve dementia symptoms

18 October 2024

Dimana Georgieva is the Programme Manager for a charity called Music for my Mind. The charity helps people with dementia to create free music playlists through their website. In this blog, she shares insights from their online study, ‘Generating and using personalised music playlists to improve behavioural and psychological symptoms in people with dementia: a […]

Volunteer survey findings 2023

24 September 2024

Last November, we invited Join Dementia Research volunteers to have their say and tell us about their experiences of the service by completing our annual survey. Feedback from our volunteers helps us to understand what we are doing well and enables us to identify areas for improvement. Engagement The annual survey was sent out to […]

New animation launched to explain Join Dementia Research service

23 September 2024

To mark World Alzheimer’s Month, we’ve created a new animation to explain the Join Dementia Research service to the public and encourage even more people to sign up.  The 2-minute long video covers how to sign up, what happens after signing up, how the service works and the types of studies you can take part […]

New dementia drug – an update

22 August 2024

News of the approval of the new Alzheimer’s drug has hit the headlines this week. Lecanemab has been approved by the MHRA, the UK’s regulator, but has been rejected by NICE so it will not be available on the NHS. Lecanemab is part of a new class of drugs that is emerging. It slows the […]

Taking part in dementia research: David’s story

16 August 2024

Despite not having dementia himself, David Batchelor from Leicester signed up to Join Dementia Research to help others with the condition. David’s health research journey began in 1962 when he took part in a study to treat his ruptured liver aged just 6 years old.  “Research saved my life” He said: “I was playing in […]

Ryan Gray: how Join Dementia Research helped me recruit more than 3,000 participants to music study

31 July 2024

Ryan Gray is a PhD student at Heriot-Watt University in Edinburgh. In 2024, he carried out a study looking at how the experience of playing an instrument, singing or listening to music might be related to memory and thinking skills in older age. The ‘How is musical experience related to our thinking skills in older […]

Restrictions on communications during the pre-election period

5 June 2024

We are now in the pre-election period, prior to the upcoming general election on 4 July. As a Government-funded organisation, we are subject to Government guidelines and restrictions on communications and engagement activity over this period. Due to this, there will be a reduction in public communications, such as: Social media content  News stories  Newsletters […]

Brain stimulation study seeks participants with Alzheimer’s disease

17 May 2024

A new study is using small amounts of electricity to stimulate the brain in people with mild cognitive impairment or Alzheimer’s disease. The aim is to see if this can help keep the part of the brain which is responsible for memory active, whilst delaying symptoms of Alzheimer’s disease. The ‘Causal role of neural activity […]

New studies looking into the health and wellbeing of carers

10 May 2024

Family members or friends who care for people with dementia are being invited to take part in 2 new studies into their health and wellbeing through Join Dementia Research. Exploring the experiences and diets of family carers of persons with dementia The first study is exploring the diet of carers and how caring for a […]