Volunteer stories

Read the stories of those participating in dementia research; find out about their experiences and what first inspired them to take part in a research study.

Playing a part in dementia research: Stan’s story

23 September 2021

Retired electrician Stan first came across Join Dementia Research when it was presented at a local dementia group meeting by Alzheimer’s Society. He was keen to learn more about the service and sign up having experienced dementia in his family.  Diagnosis Stan lost his mum to vascular dementia and through his caring for her, he […]

Maureen and Derek: how a diagnosis led to them taking part in research

22 July 2021

Maureen and Derek signed up to Join Dementia Research after Maureen was diagnosed with dementia in 2018. By participating in research, they have matched to through the service, they have picked up tips on managing the condition and have even made some new friends in the process! Health and diagnosis Maureen and Derek who have […]

Making a difference through online research studies

18 May 2021

Research volunteer Niall first came across Join Dementia Research on Twitter and was keen to sign up having experienced dementia in his family. Niall lost both his mother and mother-in-law to dementia and having witnessed their gradual fading away, he wants to do whatever he can to contribute towards our understanding of the disease and […]

Joyce’s story

12 February 2021

Joyce as a nurse

Retired nurse Joyce signed up to Join Dementia Research when she was diagnosed with Alzheimer’s disease in 2016, aged 75. Having worked as a healthcare professional, she’s always had an interest in research and an appetite for being involved herself. Professional insight During her nursing days, Joyce was trained in how to identify potential symptoms […]

Five years of Join Dementia Research: Dale and Roger’s story

25 February 2020

Read the story of Dale and Roger Kay, two of the 46,076 people who have signed up to Join Dementia Research since it launched across the UK five years ago.

Taking the research journey together: Enid and Barry’s story

23 May 2019

Barry and Enid Reeves, 91, dementia research participants at home on their sofa holding a photo album.

A couple who have been married for 69 years are taking part in dementia research together after one of them was diagnosed with Alzheimer’s disease. Enid was diagnosed with Alzheimer’s disease – the most common type of dementia – in 2016, aged 88. Now she and her husband Barry are participating in the IDEAL-2 study together.

Guest blog: Volunteering for dementia research

16 April 2019

A selfie of research volunteer Jude Clarke (left) with researcher Dr George Savulich (right)

After signing up to the Join Dementia Research initiative a few months ago, I was selected to take part as a healthy volunteer (someone who is not living with dementia) for a study called SENDeR, looking at brain connections (synapses) and how their loss leads to dementia and other brain illnesses.

The half day I spent taking part in this research project was a fascinating, worthwhile and most of all straightforward process.

Meet the women fighting back against dementia

8 March 2019

Did you know that two thirds of people with dementia are women? It’s also the leading cause of death for women over the age of 80. That’s why it’s important that as many women as possible get involved in dementia research. We meet just three of the hundreds of women who are fighting back. Dianna Moylan […]