Volunteer stories

Read the stories of those participating in dementia research; find out about their experiences and what first inspired them to take part in a research study.

Former PCSO volunteers for dementia research after diagnosis

26 July 2023

A former Police Community Support Officer (PCSO) has spoken about how volunteering for studies through Join Dementia Research has given him a sense of purpose after his Alzheimer’s disease diagnosis.  Peter Middleton from Northamptonshire was diagnosed with early onset Alzheimer’s disease in 2018, aged 64.  Diagnosis Peter said: “I had been a Police Community Support […]

Taking part in dementia research: Mary’s story

28 June 2023

Mary Stewart-David, a writer and consultant narratologist from South London, spoke movingly about her mother’s dementia diagnosis and how this inspired her to get involved in research.  Mary said: “I got involved in research as a volunteer because I saw my mother through dementia. I am aware that it might affect me in the future. […]

Ten years in dementia research: Geoff and Susie’s story

17 May 2023

A husband and wife who received a dementia diagnosis in 2013 made a decision shortly after to take part in research to regain a sense of control. Ten years on and they are still embarking on trials, saying the experience has left them feeling empowered, supported and resilient.  Diagnosis Geoff Fenwick formerly worked as a […]

Meet Research Champion Wendy Mitchell

3 March 2023

Research Champion and Sunday Times best-selling author Wendy Mitchell was diagnosed with young onset dementia at the age of 58. Wendy, who was an NHS Manager for 20 years until 2015 recalls: “I was coming out of my office one day and I didn’t know who I was or who all the people around me […]

Playing a part in dementia research: Stan’s story

23 September 2021

Retired electrician Stan first came across Join Dementia Research when it was presented at a local dementia group meeting by Alzheimer’s Society. He was keen to learn more about the service and sign up having experienced dementia in his family.  Diagnosis Stan lost his mum to vascular dementia and through his caring for her, he […]

Maureen and Derek: how a diagnosis led to them taking part in research

22 July 2021

Maureen and Derek signed up to Join Dementia Research after Maureen was diagnosed with dementia in 2018. By participating in research, they have matched to through the service, they have picked up tips on managing the condition and have even made some new friends in the process! Health and diagnosis Maureen and Derek who have […]