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Volunteer survey findings 2021

23 May 2022

Every year we ask our Join Dementia Research volunteers to tell us about their experiences of the service via a questionnaire. This helps us to understand what we are doing well and enables us to identify areas for improvement. Engagement You may have noticed some changes to the survey this year; we reduced the number […]

Dementia Action Week 2022

20 May 2022

This year, Dementia Action Week takes place 16-22 May in England, Wales and Northern Ireland. Dementia podcast With this being a key opportunity in the calendar to raise awareness about dementia, we are delighted to share a new podcast with Professor John O’Brien, the NIHR National Specialty Lead for Dementia. In this podcast, Professor O’Brien […]

Volunteer profile web updates

28 April 2022

You may have noticed that when you log into your account things look a little different.  We have listened to your feedback and as part of a continuous process of development, we have made some changes to the volunteer page. Some key changes and things to look out for are summarised below. Key updates When […]

Face to face studies currently open

14 April 2022

After a period of many online studies, we are pleased to share that researchers are increasingly inviting participants to take part in face to face studies.  Here are some examples of studies currently looking for volunteers to take part in different parts of the UK: Sleep, gut health and cognition study Insomnia in later life […]

How can virtual reality help with early diagnosis of Alzheimer’s disease?

7 March 2022

Alzheimer’s disease is the most common cause of dementia in the UK and the symptoms develop gradually over many years. Background The symptoms of Alzheimer’s disease can progress slowly and many, such as getting more forgetful, can be attributed to ‘just getting older.’ This can make diagnosis more difficult and currently there is no single […]

Join Dementia Research is 7 years old!

24 February 2022

As we mark 7 years of matching volunteers with researchers, we’d like to celebrate some of the highlights from the past year:     Since the service began, there have been over 60,000 enrollments onto studies through Join Dementia Research, that’s an increase of 12,000 in the last year.   Join Dementia Research volunteers played […]

Give your views on possible new Alzheimer’s treatments

15 February 2022

All medicines may have side effects for the people who take them. But if there was a new treatment to slow or stop Alzheimer’s, how would you weigh up its benefits against its potential risks? That’s what researchers are asking as part of a new project. One of our charity partners, Alzheimer’s Research UK, has […]

Can we predict Parkinson’s?

27 January 2022

Parkinson’s is a progressive neurological condition that leads to tremors, stiffness and difficulty with walking, as it can affect balance and coordination. Parkinson’s has more than 40 symptoms, both motor and non-motor, which usually begin gradually and get worse over time. Every hour, two more people are diagnosed. That’s the same as 18,000 people every […]

Researching the best way to improve well-being for dementia carers

12 January 2022

Many people who are living with dementia are cared for at home by a family member or a friend. We know that unpaid caring can be stressful and impact both mental and physical health, so what can be done to help? Aim of the study Researchers from Bangor University with funding from the National Institute […]

The non-approval of aducanumab in Europe still marks a significant stride forward in dementia research

17 December 2021

An opinion piece by Professor John O’Brien, NIHR Clinical Research Network National Specialty Lead for Dementias The European Medicines Agency (EMA) has today said no to approving aducanumab – a new drug to treat Alzheimer’s disease. EMA considered that although the drug removed amyloid, a toxic protein that builds up in the brains of people […]