All news

New-look Join Dementia Research website

21 July 2021

Have you noticed a different look and feel to the Join Dementia Research website? We’ve listened to your feedback and as part of a programme of development, we’ve introduced a new streamlined homepage so that the information you need can be accessed more easily.  Key updates Dedicated areas for volunteers, carers and professionals help to […]

Derek and Maureen: how a diagnosis led to them taking part in research

22 July 2021

Maureen and Derek signed up to Join Dementia Research after Maureen was diagnosed with dementia in 2018. By participating in research, they have matched to through the service, they have picked up tips on managing the condition and have even made some new friends in the process! Health and diagnosis Derek and Maureen who have […]

Now that COVID restrictions are gradually lifting, what’s next for dementia research?

15 June 2021

An opinion piece by Professor Alistair Burns,  National Clinical Director for Dementia at NHS England and Professor Martin Rossor, NIHR National Director for Dementia Research.   During the lockdowns, many of the activities that we know are good for our brain health such as socialising, exercising and other cultural experiences were made more difficult. This […]

Breakthrough Alzheimer’s drug approved in the US

8 June 2021

MRI brain scan images

The US Food and Drink Administration (FDA) has this week approved the first drug since 2003 to treat Alzheimer’s disease. Aducanumab, created by US pharmaceutical company Biogen, is an antibody designed to target amyloid, a protein that builds up in the brains of people with early stages of Alzheimer’s disease. Whereas other existing treatments help […]

Volunteer survey findings 2020

24 May 2021

Every year we ask our Join Dementia Research volunteers to tell us about their experiences of the service via a questionnaire. This helps us to understand what we are doing well and identify areas for improvement. Engagement Despite the challenges of 2020 it was fantastic to see that many of our volunteers are still engaged […]

Meet dementia researcher Dr Penny Foulds

20 May 2021

As the Neuroscience Team Leader at MAC Clinical Research; an honorary researcher at Lancaster University and a community event organiser, Dr Penny Foulds explains why Join Dementia Research is central to what she does. Personal experience “I have personal experience of dementia in my family” explains Penny, “my grandparents developed Alzheimer’s disease and it was […]

Making a difference through online research studies

18 May 2021

Research volunteer Niall first came across Join Dementia Research on Twitter and was keen to sign up having experienced dementia in his family. Niall lost both his mother and mother-in-law to dementia and having witnessed their gradual fading away, he wants to do whatever he can to contribute towards our understanding of the disease and […]

PRESIDE A singing study!

12 May 2021

It is well documented that music and singing are beneficial to those living with dementia. Listening to or singing songs can provide both behavioural and emotional benefits and the power of music can unlock memories and help provide links to a person’s past and promote connection with carers. Researchers at Nottingham University are looking for […]

Exploring the relationship between Lewy body dementia and delirium

19 April 2021

Lewy body dementia (LBD) is one of the most common forms of dementia. The symptoms of LBD can affect a variety of brain functions including; thinking, attention, sleeping and perception. It is often difficult to diagnose and can appear similar to other medical issues such as delirium. Researchers at the University of Cambridge are looking […]

Study into making financial services dementia-friendly

23 March 2021

Dementia can impair the ability of the individual to manage their financial affairs. This means that they will require support from family members in ensuring good financial outcomes and protection. Often those living with dementia enter into a power of attorney agreement that empowers a named person to act on their behalf and assist them […]