Join Dementia Research updates

Last November, we invited Join Dementia Research volunteers to have their say and tell us about their experiences of the service by completing our annual survey. Feedback from our volunteers helps us to understand what we are doing well and enables us to identify areas for improvement. Engagement The annual survey was sent out to […]

To mark World Alzheimer’s Month, we’ve created a new animation to explain the Join Dementia Research service to the public and encourage even more people to sign up.  The 2-minute long video covers how to sign up, what happens after signing up, how the service works and the types of studies you can take part […]

We are now in the pre-election period, prior to the upcoming general election on 4 July. As a Government-funded organisation, we are subject to Government guidelines and restrictions on communications and engagement activity over this period. Due to this, there will be a reduction in public communications, such as: Social media content  News stories  Newsletters […]

As Join Dementia Research celebrates 9 years of matching volunteers to dementia studies, it is timely to reflect on the progress dementia research has made both with our help and more broadly in recent years. It is encouraging to know that at any one time, there are around 150 dementia research studies underway in the […]

World Alzheimer’s Month took place in September. This year’s theme was ‘Never too early, never too late’, which focused on raising awareness of risk factors for Alzheimer’s disease and potentially preventing the onset of dementia. Throughout the month, Join Dementia Research celebrated patients, members of the public, healthcare professionals and researchers involved in research. Here […]

We are aware that a small number of people have received a phishing email, claiming to be from Join Dementia Research and encouraging people to click on a link within the email. We would like to reassure people that these are spoof emails – and have not originated from Join Dementia Research. There has been […]

Today marks 8 years since Join Dementia Research was launched to match volunteers with suitable dementia studies. Through Join Dementia Research, people can see what dementia research is taking place, both in their local area and across the UK. Here are just a few of the highlights we are celebrating from the past year: Join […]

More than 60,000 people across the UK have now signed up to Join Dementia Research to be informed of dementia studies they can take part in. Since the service began in 2015, a total of 61,639 people have signed up, with 69,515 enrolments into studies during this period. Professor John O’Brien, NIHR National Specialty Lead […]

On 14 August 2022, the Prime Minister launched a national mission to tackle dementia in memory of the late Dame Barbara Windsor. He called for volunteers to join ‘Babs’ Army’ and sign up to Join Dementia Research. Since then we’ve welcomed hundreds of new people to the service from all over the UK. About Join […]

Every year we ask our Join Dementia Research volunteers to tell us about their experiences of the service via a questionnaire. This helps us to understand what we are doing well and enables us to identify areas for improvement. Engagement You may have noticed some changes to the survey this year; we reduced the number […]