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Ten years in dementia research: Geoff and Susie’s story

17 May 2023

A husband and wife who received a dementia diagnosis in 2013 made a decision shortly after to take part in research to regain a sense of control. Ten years on and they are still embarking on trials, saying the experience has left them feeling empowered, supported and resilient.  Diagnosis Geoff Fenwick formerly worked as a […]

Grandson calls for south London volunteers for dementia research

16 May 2023

Dementia Action Week (15-21 May) is an annual awareness-raising campaign. This year’s theme is getting an earlier diagnosis of the condition. Lewis Deakin, a communications manager at the National Institute for Health and Care Research (NIHR) has written this blog in memory of his grandmother Edna for Dementia Action Week. Edna’s story Dementia is cruel. […]

New Alzheimer’s drug slows cognitive decline by 35 per cent

4 May 2023

A clinical trial has revealed a new Alzheimer’s drug can successfully slow down decline in memory and thinking by 35 per cent. Donanemab has been shown to significantly reduce cognitive decline in people with early-stage Alzheimer’s disease. The trial by US pharmaceutical company Eli Lilly showed it has been successful in removing sticky amyloid plaques […]

Dementia lead welcomes appointment of new chairs to mission

21 March 2023

The Government has announced two leaders in dementia research will co-chair a national mission dedicated to tackling the condition. Hilary Evans and Nadeem Sarwar have been appointed to the Dame Barbara Windsor Dementia Mission, following an announcement by George Freeman, the Minister for Science, Research and Innovation at the World Dementia Council Summit this week. […]

Phishing emails purporting to be Join Dementia Research

20 March 2023

We are aware that a small number of people have received a phishing email, claiming to be from Join Dementia Research and encouraging people to click on a link within the email. We would like to reassure people that these are spoof emails – and have not originated from Join Dementia Research. There has been […]

Research Champion Wendy Mitchell

3 March 2023

Research Champion and Sunday Times best-selling author Wendy Mitchell was diagnosed with young onset dementia at the age of 58. Wendy, who was an NHS Manager for 20 years until 2015 recalls: “I was coming out of my office one day and I didn’t know who I was or who all the people around me […]

Happy 8th birthday to Join Dementia Research!

24 February 2023

Today marks 8 years since Join Dementia Research was launched to match volunteers with suitable dementia studies. Through Join Dementia Research, people can see what dementia research is taking place, both in their local area and across the UK. Here are just a few of the highlights we are celebrating from the past year: Join […]

Nine in ten people want to know their brain disease risk

20 February 2023

New research has revealed that 91 per cent of people would take a simple test to learn about their risk of developing a brain disease. The anonymous online study, ‘The Global Brain Health Survey’, involved more than 27,500 people worldwide and was led by the Norwegian Institute of Public Health in collaboration with the University […]

Dementia singing study seeks Nottinghamshire volunteers

14 December 2022

A new study in Nottinghamshire is seeking volunteers to form a singing group to study the benefits of singing for people with dementia.  University of Nottingham researchers are seeking 80 people with dementia and their carers to take part in the Preliminary Randomised Evaluation of Singing in Dementia (PRESIDE 2024) study, which is using Join […]

Join Dementia Research volunteers help discover Alzheimer’s drug lecanemab

1 December 2022

The findings of a research study that discovered a treatment for early stage Alzheimer’s disease have been hailed as “momentous” by Alzheimer’s Research UK.  The new treatment, lecanemab, is the first drug to slow cognitive decline in people with early signs of the condition. The CLARITY-AD study enrolled 1,795 patients with early-stage Alzheimer’s globally, including Join […]