Certain Join Dementia Research studies have adapted to an online offer so that researchers can continue to gain important insights, and ultimately help to support those living with dementia during the COVID-19 pandemic. Beyond the margins Researchers at Durham University, the University of Edinburgh and their partners Innovations in Dementia are developing and testing a […]

Would you like to take part in a research study by anonymously sharing your feelings via your smartphone? Researchers at University College London are investigating the impact of COVID-19 on people’s physical and mental health, together with their attitudes to the pandemic and their thoughts on the public health strategies that have been put in […]

This year’s theme for World Alzheimer’s Day is “Let’s Talk About Dementia”, and it’s more important than ever that we continue to advance dementia care and treatments. Research is the best hope to do this. You can see if you are eligible to take part in our studies by registering or logging into Join Dementia Research.

Thanks to our amazing Join Dementia Research volunteers, during lockdown we have been able to continue recruiting participants to studies that don’t involve person-to-person contact. Thousands of you have taken part in important studies relating to COVID-19 and dementia.

Good sleep is critical for wellbeing – including dementia prevention and good mental health. But the COVID-19 pandemic and lockdown is placing people under huge stress, which may disturb sleep. Disturbed sleep now may have an impact on current and future health for all, in particular those at risk of dementia. The SleepQuest study needs to hear about your experiences to understand the effect that the outbreak is having and create advice on how to manage sleep throughout this crisis and beyond.

Due to the Coronavirus pandemic, many of the face-to-face services people with dementia and their carers often rely on are temporarily closed. Researchers need your help to understand the impact of these closures on the wellbeing of people with dementia and their carers.

Help researchers to improve the guidance and support around driving after a dementia diagnosis by taking part in a survey to share your experience.

Researchers have found that use of anticholinergics was linked with between a 6% and 49% increased risk of dementia, depending on the dose and duration of use. With this type of study, it is always difficult to prove direct cause and effect. Nevertheless, this is an important finding that needs looking into further. But it’s important that people do not stop taking any prescribed medicine without speaking to their doctor. The risk from stopping the medicine may be far higher than any dementia risk.

Researchers have identified a new form of dementia. Known as LATE, it shares many similarities with Alzheimer’s disease, but tends to lead to a more gradual decline in memory. LATE (limbic-predominant age-related TDP-43 encephalopathy) appears to be linked to the accumulation of a protein called TDP-43 in the brain, whereas Alzheimer’s is linked to the […]