Thanks to our amazing Join Dementia Research volunteers, during lockdown we have been able to continue recruiting participants to studies that don’t involve person-to-person contact. Thousands of you have taken part in important studies relating to COVID-19 and dementia.

Good sleep is critical for wellbeing – including dementia prevention and good mental health. But the COVID-19 pandemic and lockdown is placing people under huge stress, which may disturb sleep. Disturbed sleep now may have an impact on current and future health for all, in particular those at risk of dementia. The SleepQuest study needs to hear about your experiences to understand the effect that the outbreak is having and create advice on how to manage sleep throughout this crisis and beyond.

Due to the Coronavirus pandemic, many of the face-to-face services people with dementia and their carers often rely on are temporarily closed. Researchers need your help to understand the impact of these closures on the wellbeing of people with dementia and their carers.

Help researchers to improve the guidance and support around driving after a dementia diagnosis by taking part in a survey to share your experience.

Researchers have found that use of anticholinergics was linked with between a 6% and 49% increased risk of dementia, depending on the dose and duration of use. With this type of study, it is always difficult to prove direct cause and effect. Nevertheless, this is an important finding that needs looking into further. But it’s important that people do not stop taking any prescribed medicine without speaking to their doctor. The risk from stopping the medicine may be far higher than any dementia risk.

Researchers have identified a new form of dementia. Known as LATE, it shares many similarities with Alzheimer’s disease, but tends to lead to a more gradual decline in memory. LATE (limbic-predominant age-related TDP-43 encephalopathy) appears to be linked to the accumulation of a protein called TDP-43 in the brain, whereas Alzheimer’s is linked to the […]

We often forget that for people living with dementia, they are not the only ones who are affected by the disease. It affects their family and the people around them. Hear from Phil, who was diagnosed with Alzheimer’s and Audrey, who cares for him. Listen to why they feel dementia research is not just important for […]

This Dementia Action Week we’re showcasing how you can take action to beat dementia Annie Paton was recently diagnosed with dementia in 2013 but since then she’s been taking part in research studies such as The IDEAL study,  to turn her diagnosis and experience into something that can help people living with dementia in the […]

It is unclear why some people living with early stage dementia take up offers intervention and support and others do not. Government health policy recommends that the NHS offer support to people after they have received a diagnosis of dementia. There is also evidence that some (non-drug based) interventions developed for people with early stage […]

If you like working with groups of people and enjoy speaking in front of others, you could become a Volunteer Trainer for Join Dementia Research. At Join Dementia Research, we are passionate about sharing what we know with others. We also look for passionate individuals who like working with groups of people and enjoy speaking […]