Archives
Taking part in dementia research: Stephen’s story
22 May 2025

Stephen is a retired social worker who lives in The Wirral, Merseyside. He spoke to us about his experience of participating in an Alzheimer’s research study and why it meant so much to him. Stephen said: “For me, it feels a privilege really to be able to be part of research – and hopefully it’ll […]
Improving early dementia diagnosis: the READ-OUT study
21 May 2025

Professor Vanessa Raymont is an Associate Professor at the University of Oxford and an Honorary Consultant Psychiatrist at Oxford Health NHS Foundation Trust. She is a highly experienced psychiatrist with over 25 years research experience in the UK and USA. In this blog, she writes about the READ-OUT study into blood tests for dementia. Clinical […]
“Don’t wait until you get ill, let’s find out how to stop you getting ill”
19 May 2025

To mark Dementia Action Week (19 – 25 May), we hear the inspiring story of Mary Stewart-David, a south London writer, consultant narratologist, and dedicated dementia research participant. With years of participation, Mary continues to champion research that could change the future for people affected by dementia, including her own family. Mary lives in Dulwich […]
Why having conversations about end-of-life in dementia is so important
18 December 2024

In any area of healthcare, the topic of end-of-life is very difficult. It’s hard to talk about for people with a diagnosis, their families and healthcare professionals. But it is important to discuss, particularly with people living with dementia. Research has shown that people who have had end-of-life care conversations early on have an improved […]
Donanemab – an update
31 October 2024

Last week it was announced that the dementia drug, donanemab, has been approved by the Medicines and Healthcare products Regulatory Agency (MHRA). This means it will be available under private prescription in the UK. However, it has been rejected by National Institute of Health and Care Excellence (NICE), so it will not be available on […]
Brain stimulation study seeks participants with Alzheimer’s disease
17 May 2024

A new study is using small amounts of electricity to stimulate the brain in people with mild cognitive impairment or Alzheimer’s disease. The aim is to see if this can help keep the part of the brain which is responsible for memory active, whilst delaying symptoms of Alzheimer’s disease. The ‘Causal role of neural activity […]
Lewy body dementia studies currently recruiting participants
19 February 2024

Accounting for 10-15 percent of dementia cases in the UK, Lewy body is the second most common form of dementia. However, the recent World Lewy Body Day brought into sharp focus the fact that very little is known about this form of dementia, highlighting the need for more research. Lewy body dementia is caused by […]
People with a dementia diagnosis needed for recently opened studies
7 December 2023

We often have studies specifically for participants with a dementia diagnosis and a few recent ones have just opened up. The studies include using a phone app, physical and memory tests and are supported by the National Institute for Health and Care Research (NIHR). Vascular mEchanisms in, Stroke, dePression, dementiA, and deliRum: The VESPAR project […]
Brain health in over 50s deteriorated during pandemic, research finds
13 November 2023

New NIHR supported research shows that brain health in people over 50 deteriorated more rapidly during the pandemic. This was true regardless of whether they had COVID-19. Researchers analysed brain function tests completed by more than 3,000 UK people aged 50 to 90, many of which were recruited through Join Dementia Research. The results The […]
Why you should get involved in dementia research: Rianna’s story
22 September 2023

A Sussex woman has spoken about losing her grandfather to dementia and how this inspired her to get involved in research. Rianna Patterson, of Hastings, lost her grandfather, Terry Vidal, to dementia in 2013. Following his death, she has been involved in dementia research. This included working with a National Institute for Health and Care […]