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Taking part in dementia research: Mary’s story

28 June 2023

Mary Stewart-David, a writer and consultant narratologist from South London, spoke movingly about her mother’s dementia diagnosis and how this inspired her to get involved in research.  Mary said: “I got involved in research as a volunteer because I saw my mother through dementia. I am aware that it might affect me in the future. […]

Promoting research for Dementia Action Week 2023

19 May 2023

Dementia Action Week took place from between 15 to 21 May this year and focused on getting an earlier diagnosis. Throughout the week, Join Dementia Research celebrated patients, members of the public, healthcare professionals and researchers involved in research. Here’s some of our highlights from this year’s campaign – a selection of videos and written […]

Ten years in dementia research: Geoff and Susie’s story

17 May 2023

A husband and wife who received a dementia diagnosis in 2013 made a decision shortly after to take part in research to regain a sense of control. Ten years on and they are still embarking on trials, saying the experience has left them feeling empowered, supported and resilient.  Diagnosis Geoff Fenwick formerly worked as a […]

Grandson calls for south London volunteers for dementia research

16 May 2023

Dementia Action Week (15-21 May) is an annual awareness-raising campaign. This year’s theme is getting an earlier diagnosis of the condition. Lewis Deakin, a communications manager at the National Institute for Health and Care Research (NIHR) has written this blog in memory of his grandmother Edna for Dementia Action Week. Edna’s story Dementia is cruel. […]

New Alzheimer’s drug slows cognitive decline by 35 per cent

4 May 2023

A clinical trial has revealed a new Alzheimer’s drug can successfully slow down decline in memory and thinking by 35 per cent. Donanemab has been shown to significantly reduce cognitive decline in people with early-stage Alzheimer’s disease. The trial by US pharmaceutical company Eli Lilly showed it has been successful in removing sticky amyloid plaques […]

Dementia lead welcomes appointment of new chairs to mission

21 March 2023

The Government has announced two leaders in dementia research will co-chair a national mission dedicated to tackling the condition. Hilary Evans and Nadeem Sarwar have been appointed to the Dame Barbara Windsor Dementia Mission, following an announcement by George Freeman, the Minister for Science, Research and Innovation at the World Dementia Council Summit this week. […]

Phishing emails purporting to be Join Dementia Research

20 March 2023

We are aware that a small number of people have received a phishing email, claiming to be from Join Dementia Research and encouraging people to click on a link within the email. We would like to reassure people that these are spoof emails – and have not originated from Join Dementia Research. There has been […]

Research Champion Wendy Mitchell

3 March 2023

Research Champion and Sunday Times best-selling author Wendy Mitchell was diagnosed with young onset dementia at the age of 58. Wendy, who was an NHS Manager for 20 years until 2015 recalls: “I was coming out of my office one day and I didn’t know who I was or who all the people around me […]

Happy 8th birthday to Join Dementia Research!

24 February 2023

Today marks 8 years since Join Dementia Research was launched to match volunteers with suitable dementia studies. Through Join Dementia Research, people can see what dementia research is taking place, both in their local area and across the UK. Here are just a few of the highlights we are celebrating from the past year: Join […]

Nine in ten people want to know their brain disease risk

20 February 2023

New research has revealed that 91 per cent of people would take a simple test to learn about their risk of developing a brain disease. The anonymous online study, ‘The Global Brain Health Survey’, involved more than 27,500 people worldwide and was led by the Norwegian Institute of Public Health in collaboration with the University […]