Join Dementia Research updates

This year, Dementia Action Week takes place 16-22 May in England, Wales and Northern Ireland. Dementia podcast With this being a key opportunity in the calendar to raise awareness about dementia, we are delighted to share a new podcast with Professor John O’Brien, the NIHR National Specialty Lead for Dementia. In this podcast, Professor O’Brien […]

You may have noticed that when you log into your account things look a little different.  We have listened to your feedback and as part of a continuous process of development, we have made some changes to the volunteer page. Some key changes and things to look out for are summarised below. Key updates When […]

As we mark 7 years of matching volunteers with researchers, we’d like to celebrate some of the highlights from the past year:     Since the service began, there have been over 60,000 enrolments onto studies through Join Dementia Research, that’s an increase of 12,000 in the last year.   Join Dementia Research volunteers played […]

September is World Alzheimer’s Month and this time each year, people from around the world come together to raise awareness about dementia. September 2021 marks the tenth year of this important global awareness campaign. Rates of dementia are increasing; every three minutes, someone in the UK develops dementia. There are currently 850,000 people in the […]

On 1 October 2021, I will be stepping down as NIHR National Director for Dementia Research. One of my roles was to set up the Join Dementia Research service, to facilitate those living with dementia, their carers and the public to engage in research and to support dementia researchers to recruit individuals into research. Over […]

Have you noticed a different look and feel to the Join Dementia Research website? We’ve listened to your feedback and as part of a programme of development, we’ve introduced a new streamlined homepage so that the information you need can be accessed more easily.  Key updates Dedicated areas for volunteers, carers and professionals help to […]

Every year we ask our Join Dementia Research volunteers to tell us about their experiences of the service via a questionnaire. This helps us to understand what we are doing well and identify areas for improvement. Engagement Despite the challenges of 2020 it was fantastic to see that many of our volunteers are still engaged […]

More than one million participants have now taken part in COVID-19 research across the UK. We would like to thank all the Join Dementia Research volunteers who have contributed towards this achievement. This milestone has been achieved across England, Northern Ireland, Scotland and Wales by members of the public, NHS doctors and nurses, NIHR research […]

As we turn six today, we are celebrating not only six years of bringing researchers and volunteers together, but also our collective achievement of helping dementia research to keep going during the pandemic.   See what our volunteers, charity partners and researchers have to say about us!   Since Join Dementia Research began, an incredible […]

The National Institute of Health Research (NIHR)’s Centre for Engagement and Dissemination has this week published a piece of work bringing together NIHR research on several aspects of dementia.  To better understand how research translates into practical change, we asked a number of health and social care professionals, carers and service users to comment on […]