Join Dementia Research updates

Keep up to date with the latest news and announcements from Join Dementia Research

Restrictions on communications during the pre-election period

5 June 2024

We are now in the pre-election period, prior to the upcoming general election on 4 July. As a Government-funded organisation, we are subject to Government guidelines and restrictions on communications and engagement activity over this period. Due to this, there will be a reduction in public communications, such as: Social media content  News stories  Newsletters […]

Significant breakthroughs in dementia research

26 February 2024

As Join Dementia Research celebrates 9 years of matching volunteers to dementia studies, it is timely to reflect on the progress dementia research has made both with our help and more broadly in recent years. It is encouraging to know that at any one time, there are around 150 dementia research studies underway in the […]

Celebrating World Alzheimer’s Month 2023

29 September 2023

World Alzheimer’s Month took place in September. This year’s theme was ‘Never too early, never too late’, which focused on raising awareness of risk factors for Alzheimer’s disease and potentially preventing the onset of dementia. Throughout the month, Join Dementia Research celebrated patients, members of the public, healthcare professionals and researchers involved in research. Here […]

Phishing emails purporting to be Join Dementia Research

20 March 2023

We are aware that a small number of people have received a phishing email, claiming to be from Join Dementia Research and encouraging people to click on a link within the email. We would like to reassure people that these are spoof emails – and have not originated from Join Dementia Research. There has been […]

Happy 8th birthday to Join Dementia Research!

24 February 2023

Today marks 8 years since Join Dementia Research was launched to match volunteers with suitable dementia studies. Through Join Dementia Research, people can see what dementia research is taking place, both in their local area and across the UK. Here are just a few of the highlights we are celebrating from the past year: Join […]

Join Dementia Research reaches 60,000 volunteers

23 November 2022

More than 60,000 people across the UK have now signed up to Join Dementia Research to be informed of dementia studies they can take part in. Since the service began in 2015, a total of 61,639 people have signed up, with 69,515 enrolments into studies during this period. Professor John O’Brien, NIHR National Specialty Lead […]

New volunteers sign up as Prime Minister launches national dementia mission

15 August 2022

On 14 August 2022, the Prime Minister launched a national mission to tackle dementia in memory of the late Dame Barbara Windsor. He called for volunteers to join ‘Babs’ Army’ and sign up to Join Dementia Research. Since then we’ve welcomed hundreds of new people to the service from all over the UK. About Join […]

Volunteer survey findings 2021

23 May 2022

Every year we ask our Join Dementia Research volunteers to tell us about their experiences of the service via a questionnaire. This helps us to understand what we are doing well and enables us to identify areas for improvement. Engagement You may have noticed some changes to the survey this year; we reduced the number […]

Dementia Action Week 2022

20 May 2022

This year, Dementia Action Week takes place 16-22 May in England, Wales and Northern Ireland. Dementia podcast With this being a key opportunity in the calendar to raise awareness about dementia, we are delighted to share a new podcast with Professor John O’Brien, the NIHR National Specialty Lead for Dementia. In this podcast, Professor O’Brien […]

Volunteer profile web updates

28 April 2022

You may have noticed that when you log into your account things look a little different.  We have listened to your feedback and as part of a continuous process of development, we have made some changes to the volunteer page. Some key changes and things to look out for are summarised below. Key updates When […]