Archives

Donanemab – an update

31 October 2024

Last week it was announced that the dementia drug, donanemab, has been approved by the Medicines and Healthcare products Regulatory Agency (MHRA). This means it will be available under private prescription in the UK. However, it has been rejected by National Institute of Health and Care Excellence (NICE), so it will not be available on […]

Blog: using music to help improve dementia symptoms

18 October 2024

Dimana Georgieva is the Programme Manager for a charity called Music for my Mind. The charity helps people with dementia to create free music playlists through their website. In this blog, she shares insights from their online study, ‘Generating and using personalised music playlists to improve behavioural and psychological symptoms in people with dementia: a […]

Study explores views on new technology to locate missing people with dementia

24 April 2024

Views on using face-matching technology and an online form to locate missing family members with dementia faster are being assessed in a new study. Those who have experienced a family member going missing are being invited to take part in the UCL Stay Safe study. The study is being led by University College London (UCL) […]

Navigating social media use for people living with dementia

31 January 2024

With social media platforms offering an easy way of finding out what is happening locally, it is easy to see the appeal for people living with dementia.  In order for these platforms to be even more effective, new research supported by Join Dementia Research highlights the need for social media guidance specifically for carers of […]

People with a dementia diagnosis needed for recently opened studies

7 December 2023

We often have studies specifically for participants with a dementia diagnosis and a few recent ones have just opened up. The studies include using a phone app, physical and memory tests and are supported by the National Institute for Health and Care Research (NIHR). Vascular mEchanisms in, Stroke, dePression, dementiA, and deliRum: The VESPAR project […]

New studies recruiting carers through Join Dementia Research

5 December 2023

The mental health of family members caring for people with dementia is rightly an area of increasing importance. A number of studies that are looking at precisely this area are recruiting dementia carers through Join Dementia Research. The following studies are all supported by the National Institute for Health and Care Research (NIHR). iACT4CARERS A […]

Jessica Baggaley: Using Join Dementia Research to recruit participants

5 October 2023

Jessica Baggaley is a trainee clinical psychologist at the University of Hull. She carried out a research study as part of her doctorate in Clinical Psychology which looked at measuring self-compassion with people living with dementia. Self-compassion is defined as being kind and understanding towards ourselves. About the study In this research we wanted to […]

Former PCSO volunteers for dementia research after diagnosis

26 July 2023

A former Police Community Support Officer (PCSO) has spoken about how volunteering for studies through Join Dementia Research has given him a sense of purpose after his Alzheimer’s disease diagnosis.  Peter Middleton from Northamptonshire was diagnosed with early onset Alzheimer’s disease in 2018, aged 64.  Diagnosis Peter said: “I had been a Police Community Support […]

Drug donanemab hailed as breakthrough in treating Alzheimer’s disease following trial

19 July 2023

A new drug has been hailed as a scientific breakthrough in treating Alzheimer’s disease, following the publication of final trial results in the medical journal, JAMA.  The findings show donanemab can successfully slow down decline in memory and thinking by 35 per cent among people with early-stage Alzheimer’s Disease. The drug’s ability to slow down […]

Taking part in dementia research: Mary’s story

28 June 2023

Mary Stewart-David, a writer and consultant narratologist from South London, spoke movingly about her mother’s dementia diagnosis and how this inspired her to get involved in research.  Mary said: “I got involved in research as a volunteer because I saw my mother through dementia. I am aware that it might affect me in the future. […]

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