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Jessica Baggaley: Using Join Dementia Research to recruit participants
5 October 2023
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Jessica Baggaley is a trainee clinical psychologist at the University of Hull. She carried out a research study as part of her doctorate in Clinical Psychology which looked at measuring self-compassion with people living with dementia. Self-compassion is defined as being kind and understanding towards ourselves. About the study In this research we wanted to […]
Celebrating World Alzheimer’s Month 2023
29 September 2023
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World Alzheimer’s Month took place in September. This year’s theme was ‘Never too early, never too late’, which focused on raising awareness of risk factors for Alzheimer’s disease and potentially preventing the onset of dementia. Throughout the month, Join Dementia Research celebrated patients, members of the public, healthcare professionals and researchers involved in research. Here […]
Why you should get involved in dementia research: Rianna’s story
22 September 2023
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A Sussex woman has spoken about losing her grandfather to dementia and how this inspired her to get involved in research. Rianna Patterson, of Hastings, lost her grandfather, Terry Vidal, to dementia in 2013. Following his death, she has been involved in dementia research. This included working with a National Institute for Health and Care […]
Former PCSO volunteers for dementia research after diagnosis
26 July 2023
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A former Police Community Support Officer (PCSO) has spoken about how volunteering for studies through Join Dementia Research has given him a sense of purpose after his Alzheimer’s disease diagnosis. Peter Middleton from Northamptonshire was diagnosed with early onset Alzheimer’s disease in 2018, aged 64. Diagnosis Peter said: “I had been a Police Community Support […]
Drug donanemab hailed as breakthrough in treating Alzheimer’s disease following trial
19 July 2023
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A new drug has been hailed as a scientific breakthrough in treating Alzheimer’s disease, following the publication of final trial results in the medical journal, JAMA. The findings show donanemab can successfully slow down decline in memory and thinking by 35 per cent among people with early-stage Alzheimer’s Disease. The drug’s ability to slow down […]
South London researcher uses Join Dementia Research to boost recruitment
10 July 2023
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Olga Borejko, a researcher and project manager at the Department of Old Age Psychiatry, King’s College London, spoke about the benefits of using Join Dementia Research to boost recruitment to a study into dementia with Lewy bodies (DLB), supported by the National Institute for Health and Care Research. Olga sets up and manages commercial and […]
Taking part in dementia research: Mary’s story
28 June 2023
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Mary Stewart-David, a writer and consultant narratologist from South London, spoke movingly about her mother’s dementia diagnosis and how this inspired her to get involved in research. Mary said: “I got involved in research as a volunteer because I saw my mother through dementia. I am aware that it might affect me in the future. […]
Promoting research for Dementia Action Week 2023
19 May 2023
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Dementia Action Week took place from between 15 to 21 May this year and focused on getting an earlier diagnosis. Throughout the week, Join Dementia Research celebrated patients, members of the public, healthcare professionals and researchers involved in research. Here’s some of our highlights from this year’s campaign – a selection of videos and written […]
Ten years in dementia research: Geoff and Susie’s story
17 May 2023
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A husband and wife who received a dementia diagnosis in 2013 made a decision shortly after to take part in research to regain a sense of control. Ten years on and they are still embarking on trials, saying the experience has left them feeling empowered, supported and resilient. Diagnosis Geoff Fenwick formerly worked as a […]
Grandson calls for south London volunteers for dementia research
16 May 2023
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Dementia Action Week (15-21 May) is an annual awareness-raising campaign. This year’s theme is getting an earlier diagnosis of the condition. Lewis Deakin, a communications manager at the National Institute for Health and Care Research (NIHR) has written this blog in memory of his grandmother Edna for Dementia Action Week. Edna’s story Dementia is cruel. […]