Although the causes of dementia are not yet known, we do know which lifestyle choices such as diet, exercise and smoking can affect brain health and the chances of developing dementia. Until now, there has been little insight into the perceptions of brain health around the world. In June 2019 an anonymous online survey ‘The […]

Every year we ask our Join Dementia Research volunteers to tell us about their experiences of the service via a questionnaire. This helps us to understand what we are doing well and enables us to identify areas for improvement. Engagement You may have noticed some changes to the survey this year; we reduced the number […]

This year, Dementia Action Week takes place 16-22 May in England, Wales and Northern Ireland. Dementia podcast With this being a key opportunity in the calendar to raise awareness about dementia, we are delighted to share a new podcast with Professor John O’Brien, the NIHR National Specialty Lead for Dementia. In this podcast, Professor O’Brien […]

You may have noticed that when you log into your account things look a little different.  We have listened to your feedback and as part of a continuous process of development, we have made some changes to the volunteer page. Some key changes and things to look out for are summarised below. Key updates When […]

After a period of many online studies, we are pleased to share that researchers are increasingly inviting participants to take part in face to face studies.  Here are some examples of studies currently looking for volunteers to take part in different parts of the UK: Sleep, gut health and cognition study Insomnia in later life […]

Alzheimer’s disease is the most common cause of dementia in the UK and the symptoms develop gradually over many years. Background The symptoms of Alzheimer’s disease can progress slowly and many, such as getting more forgetful, can be attributed to ‘just getting older.’ This can make diagnosis more difficult and currently there is no single […]

As we mark 7 years of matching volunteers with researchers, we’d like to celebrate some of the highlights from the past year:     Since the service began, there have been over 60,000 enrolments onto studies through Join Dementia Research, that’s an increase of 12,000 in the last year.   Join Dementia Research volunteers played […]

All medicines may have side effects for the people who take them. But if there was a new treatment to slow or stop Alzheimer’s, how would you weigh up its benefits against its potential risks? That’s what researchers are asking as part of a new project. One of our charity partners, Alzheimer’s Research UK, has […]

Parkinson’s is a progressive neurological condition that leads to tremors, stiffness and difficulty with walking, as it can affect balance and coordination. Parkinson’s has more than 40 symptoms, both motor and non-motor, which usually begin gradually and get worse over time. Every hour, two more people are diagnosed. That’s the same as 18,000 people every […]

Many people who are living with dementia are cared for at home by a family member or a friend. We know that unpaid caring can be stressful and impact both mental and physical health, so what can be done to help? Aim of the study Researchers from Bangor University with funding from the National Institute […]