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There are a number of dementia research studies that are now restarting after some non-COVID studies were paused earlier this year. One of these is the SENSE-Cog study which looks at the combined impact of age-related hearing, vision and cognitive problems. Around 80% of people with dementia have a hearing or vision problem and if […]

Would you like to take part in a research study by anonymously sharing your feelings via your smartphone? Researchers at University College London are investigating the impact of COVID-19 on people’s physical and mental health, together with their attitudes to the pandemic and their thoughts on the public health strategies that have been put in […]

Do you have dementia, or do you care for someone who does? Have the COVID-19 restrictions had an impact on your wellbeing? Researchers at the UK Dementia Research Institute at Imperial College London would like to hear about your experience of the current situation. They are keen to understand what measures can be taken to […]

This year’s theme for World Alzheimer’s Day is “Let’s Talk About Dementia”, and it’s more important than ever that we continue to advance dementia care and treatments. Research is the best hope to do this. You can see if you are eligible to take part in our studies by registering or logging into Join Dementia Research.

Thanks to our amazing Join Dementia Research volunteers, during lockdown we have been able to continue recruiting participants to studies that don’t involve person-to-person contact. Thousands of you have taken part in important studies relating to COVID-19 and dementia.

Good sleep is critical for wellbeing – including dementia prevention and good mental health. But the COVID-19 pandemic and lockdown is placing people under huge stress, which may disturb sleep. Disturbed sleep now may have an impact on current and future health for all, in particular those at risk of dementia. The SleepQuest study needs to hear about your experiences to understand the effect that the outbreak is having and create advice on how to manage sleep throughout this crisis and beyond.

Lockdown and social distancing are essential to help combat COVID-19, but adjusting can be difficult – especially for people living with dementia. That’s why researchers have developed a new leaflet with five simple tips, designed to help make things more manageable for anyone who currently lives with dementia or cares for someone who does. The leaflet gives practical and self-help tips on five key points, and has been created using the latest robust research with the input of people affected by dementia.

Due to the Coronavirus pandemic, many of the face-to-face services people with dementia and their carers often rely on are temporarily closed. Researchers need your help to understand the impact of these closures on the wellbeing of people with dementia and their carers.

An update from Professor Martin Rossor, NIHR National Director for Dementia Research.

To mark the fifth anniversary of Join Dementia Research, we asked some of the people closest to the service to share their thoughts on how far Join Dementia Research has come.