In any area of healthcare, the topic of end-of-life is very difficult. It’s hard to talk about for people with a diagnosis, their families and healthcare professionals. But it is important to discuss, particularly with people living with dementia. Research has shown that people who have had end-of-life care conversations early on have an improved […]

Many anonymous online survey studies are seeking volunteers through Join Dementia Research. These studies are quick and easy to take part in. They provide important data to help further our understanding of dementia. Here are 2 studies currently taking place: MINDER (TIHM Technology Perceptions) People with dementia may have biases towards health technologies. This may […]

  Terry Quinn is a Professor of Cardiovascular Ageing at the University of Glasgow. He recently led a study, working with volunteers in the Join Dementia Research community. The aim was to investigate what activities of daily living are important to older adults.  They found that the existing tools and methods often used to measure […]

Parkinson’s is a progressive neurological condition that leads to tremors, stiffness and difficulty with walking, as it can affect balance and coordination. Parkinson’s has more than 40 symptoms, both motor and non-motor, which usually begin gradually and get worse over time. Every hour, two more people are diagnosed. That’s the same as 18,000 people every […]

The ‘Gotcha!’ study is trialling a fun computer-based therapy to help people with dementia remember the names of the people who are important to them.

Not all research takes place in a lab. Many different types of study are vital to understanding dementia, so there are often ways you can help out from the comfort of your own home. Surveys, questionnaires and online activities give scientists the knowledge they need to improve dementia care and treatments. The Bristol study One […]

We spoke to Anne-Marie Greenaway, PHD student at the University of Reading, who is leading a study to investigate the emotional wellbeing of people living with dementia. When someone experiences a low mood, it makes it more difficult to complete everyday tasks. Low mood increases the level of cognitive impairment in people living with dementia. As approximately half the number of […]