Archives

Navigating social media use for people living with dementia

31 January 2024

With social media platforms offering an easy way of finding out what is happening locally, it is easy to see the appeal for people living with dementia.  In order for these platforms to be even more effective, new research supported by Join Dementia Research highlights the need for social media guidance specifically for carers of […]

People with a dementia diagnosis needed for recently opened studies

7 December 2023

We often have studies specifically for participants with a dementia diagnosis and a few recent ones have just opened up. The studies include using a phone app, physical and memory tests and are supported by the National Institute for Health and Care Research (NIHR). Vascular mEchanisms in, Stroke, dePression, dementiA, and deliRum: The VESPAR project […]

Former PCSO volunteers for dementia research after diagnosis

26 July 2023

A former Police Community Support Officer (PCSO) has spoken about how volunteering for studies through Join Dementia Research has given him a sense of purpose after his Alzheimer’s disease diagnosis.  Peter Middleton from Northamptonshire was diagnosed with early onset Alzheimer’s disease in 2018, aged 64.  Diagnosis Peter said: “I had been a Police Community Support […]

Ten years in dementia research: Geoff and Susie’s story

17 May 2023

A husband and wife who received a dementia diagnosis in 2013 made a decision shortly after to take part in research to regain a sense of control. Ten years on and they are still embarking on trials, saying the experience has left them feeling empowered, supported and resilient.  Diagnosis Geoff Fenwick formerly worked as a […]

Grandson calls for south London volunteers for dementia research

16 May 2023

Dementia Action Week (15-21 May) is an annual awareness-raising campaign. This year’s theme is getting an earlier diagnosis of the condition. Lewis Deakin, a communications manager at the National Institute for Health and Care Research (NIHR) has written this blog in memory of his grandmother Edna for Dementia Action Week. Edna’s story Dementia is cruel. […]

Meet Research Champion Wendy Mitchell

3 March 2023

Research Champion and Sunday Times best-selling author Wendy Mitchell was diagnosed with young onset dementia at the age of 58. Wendy, who was an NHS Manager for 20 years until 2015 recalls: “I was coming out of my office one day and I didn’t know who I was or who all the people around me […]

Face to face studies currently open

14 April 2022

After a period of many online studies, we are pleased to share that researchers are increasingly inviting participants to take part in face to face studies.  Here are some examples of studies currently looking for volunteers to take part in different parts of the UK: Sleep, gut health and cognition study Insomnia in later life […]

How can virtual reality help with early diagnosis of Alzheimer’s disease?

7 March 2022

Alzheimer’s disease is the most common cause of dementia in the UK and the symptoms develop gradually over many years. Background The symptoms of Alzheimer’s disease can progress slowly and many, such as getting more forgetful, can be attributed to ‘just getting older.’ This can make diagnosis more difficult and currently there is no single […]

Give your views on possible new Alzheimer’s treatments

15 February 2022

All medicines may have side effects for the people who take them. But if there was a new treatment to slow or stop Alzheimer’s, how would you weigh up its benefits against its potential risks? That’s what researchers are asking as part of a new project. One of our charity partners, Alzheimer’s Research UK, has […]

Can we predict Parkinson’s?

27 January 2022

Parkinson’s is a progressive neurological condition that leads to tremors, stiffness and difficulty with walking, as it can affect balance and coordination. Parkinson’s has more than 40 symptoms, both motor and non-motor, which usually begin gradually and get worse over time. Every hour, two more people are diagnosed. That’s the same as 18,000 people every […]

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