A former Police Community Support Officer (PCSO) has spoken about how volunteering for studies through Join Dementia Research has given him a sense of purpose after his Alzheimer’s disease diagnosis.  Peter Middleton from Northamptonshire was diagnosed with early onset Alzheimer’s disease in 2018, aged 64.  Diagnosis Peter said: “I had been a Police Community Support […]

Olga Borejko, a researcher and project manager at the Department of Old Age Psychiatry, King’s College London, spoke about the benefits of using Join Dementia Research to boost recruitment to a study into dementia with Lewy bodies (DLB), supported by the National Institute for Health and Care Research. Olga sets up and manages commercial and […]

Dementia Action Week took place from between 15 to 21 May this year and focused on getting an earlier diagnosis. Throughout the week, Join Dementia Research celebrated patients, members of the public, healthcare professionals and researchers involved in research. Here’s some of our highlights from this year’s campaign – a selection of videos and written […]

A husband and wife who received a dementia diagnosis in 2013 made a decision shortly after to take part in research to regain a sense of control. Ten years on and they are still embarking on trials, saying the experience has left them feeling empowered, supported and resilient.  Diagnosis Geoff Fenwick formerly worked as a […]

Dementia Action Week (15-21 May) is an annual awareness-raising campaign. This year’s theme is getting an earlier diagnosis of the condition. Lewis Deakin, a communications manager at the National Institute for Health and Care Research (NIHR) has written this blog in memory of his grandmother Edna for Dementia Action Week. Edna’s story Dementia is cruel. […]

We are aware that a small number of people have received a phishing email, claiming to be from Join Dementia Research and encouraging people to click on a link within the email. We would like to reassure people that these are spoof emails – and have not originated from Join Dementia Research. There has been […]

Research Champion and Sunday Times best-selling author Wendy Mitchell was diagnosed with young onset dementia at the age of 58. Wendy, who was an NHS Manager for 20 years until 2015 recalls: “I was coming out of my office one day and I didn’t know who I was or who all the people around me […]

Today marks 8 years since Join Dementia Research was launched to match volunteers with suitable dementia studies. Through Join Dementia Research, people can see what dementia research is taking place, both in their local area and across the UK. Here are just a few of the highlights we are celebrating from the past year: Join […]

New research has revealed that 91 per cent of people would take a simple test to learn about their risk of developing a brain disease. The anonymous online study, ‘The Global Brain Health Survey’, involved more than 27,500 people worldwide and was led by the Norwegian Institute of Public Health in collaboration with the University […]

More than 60,000 people across the UK have now signed up to Join Dementia Research to be informed of dementia studies they can take part in. Since the service began in 2015, a total of 61,639 people have signed up, with 69,515 enrolments into studies during this period. Professor John O’Brien, NIHR National Specialty Lead […]