In any area of healthcare, the topic of end-of-life is very difficult. It’s hard to talk about for people with a diagnosis, their families and healthcare professionals. But it is important to discuss, particularly with people living with dementia. Research has shown that people who have had end-of-life care conversations early on have an improved […]

As 2024 draws to a close, we look back at some of the breakthroughs in dementia research and the achievements and milestones of the Join Dementia Research service.  More volunteers sign up to Join Dementia Research than previous year More than 80,000 volunteers have now signed up to Join Dementia Research since its inception in […]

To mark World Alzheimer’s Month, we’ve created a new animation to explain the Join Dementia Research service to the public and encourage even more people to sign up.  The 2-minute long video covers how to sign up, what happens after signing up, how the service works and the types of studies you can take part […]

As Join Dementia Research celebrates 9 years of matching volunteers to dementia studies, it is timely to reflect on the progress dementia research has made both with our help and more broadly in recent years. It is encouraging to know that at any one time, there are around 150 dementia research studies underway in the […]

We would like to pay tribute to our friend Wendy Mitchell who sadly passed away this week. Wendy was known and loved by many for her resilience and for her candid insights into what it is like to live with dementia. She defied the odds by writing three books – including Sunday Times bestsellers – […]

A study into whether brushing teeth daily can slow memory loss in people with early stage Alzheimer’s disease is recruiting participants through Join Dementia Research. The MySmile study, led by the University of Bristol and supported by the National Institute for Health and Care Research (NIHR), is recruiting people aged 60 and over with either […]

The mental health of family members caring for people with dementia is rightly an area of increasing importance. A number of studies that are looking at precisely this area are recruiting dementia carers through Join Dementia Research. The following studies are all supported by the National Institute for Health and Care Research (NIHR). iACT4CARERS A […]

Jessica Baggaley is a trainee clinical psychologist at the University of Hull. She carried out a research study as part of her doctorate in Clinical Psychology which looked at measuring self-compassion with people living with dementia. Self-compassion is defined as being kind and understanding towards ourselves. About the study In this research we wanted to […]

World Alzheimer’s Month took place in September. This year’s theme was ‘Never too early, never too late’, which focused on raising awareness of risk factors for Alzheimer’s disease and potentially preventing the onset of dementia. Throughout the month, Join Dementia Research celebrated patients, members of the public, healthcare professionals and researchers involved in research. Here […]

A Sussex woman has spoken about losing her grandfather to dementia and how this inspired her to get involved in research. Rianna Patterson, of Hastings, lost her grandfather, Terry Vidal, to dementia in 2013. Following his death, she has been involved in dementia research. This included working with a National Institute for Health and Care […]