Stephen is a retired social worker who lives in The Wirral, Merseyside. He spoke to us about his experience of participating in an Alzheimer’s research study and why it meant so much to him. Stephen said: “For me, it feels a privilege really to be able to be part of research – and hopefully it’ll […]

Professor Vanessa Raymont is an Associate Professor at the University of Oxford and an Honorary Consultant Psychiatrist at Oxford Health NHS Foundation Trust. She is a highly experienced psychiatrist with over 25 years research experience in the UK and USA. In this blog, she writes about the READ-OUT study into blood tests for dementia. Clinical […]

Dr Jenna Littlejohn from the University of Manchester, alongside Dr Ross Dunne from Greater Manchester Mental Health NHS Foundation Trust, is leading a new research study into hearing and dementia. The Auditory Biomarkers of Healthy Ageing and Alzheimer’s Disease (ABHAD) study looks at how hearing changes in people with Alzheimer’s disease compared to healthy people. […]

To mark Dementia Action Week (19 – 25 May), we hear the inspiring story of Mary Stewart-David, a south London writer, consultant narratologist, and dedicated dementia research participant. With years of participation, Mary continues to champion research that could change the future for people affected by dementia,  including her own family. Mary lives in Dulwich […]

Dementia Action Week took place from between 15 to 21 May this year and focused on getting an earlier diagnosis. Throughout the week, Join Dementia Research celebrated patients, members of the public, healthcare professionals and researchers involved in research. Here’s some of our highlights from this year’s campaign – a selection of videos and written […]

A husband and wife who received a dementia diagnosis in 2013 made a decision shortly after to take part in research to regain a sense of control. Ten years on and they are still embarking on trials, saying the experience has left them feeling empowered, supported and resilient.  Diagnosis Geoff Fenwick formerly worked as a […]

Dementia Action Week (15-21 May) is an annual awareness-raising campaign. This year’s theme is getting an earlier diagnosis of the condition. Lewis Deakin, a communications manager at the National Institute for Health and Care Research (NIHR) has written this blog in memory of his grandmother Edna for Dementia Action Week. Edna’s story Dementia is cruel. […]

Every year we ask our Join Dementia Research volunteers to tell us about their experiences of the service via a questionnaire. This helps us to understand what we are doing well and identify areas for improvement. Engagement Despite the challenges of 2020 it was fantastic to see that many of our volunteers are still engaged […]

As the Neuroscience Team Leader at MAC Clinical Research; an honorary researcher at Lancaster University and a community event organiser, Dr Penny Foulds explains why Join Dementia Research is central to what she does. Personal experience “I have personal experience of dementia in my family” explains Penny, “my grandparents developed Alzheimer’s disease and it was […]

In this blog for Dementia Action Week, Professor Martin Rossor reflects on how far dementia research has come, and looks ahead to how healthcare professionals, researchers and the public can take the next step together.