Study results
These are the results of studies that people have participated in through Join Dementia Research that have been published so far. New studies will be added when they become available.
Study results are published to share findings with other clinicians and researchers, so there may be some technical language.
However we hope these results will also offer you an insight into the value of taking part in research.
Published 2019
- Carers’ experience of using assistive technology for dementia care at home: a qualitative study
- Consecutive sessions of transcranial direct current stimulation do not remediate visual hallucinations in Lewy body dementia
- Subjective Cognitive Impairment in 55-65-Year-Old Adults Is Associated with Negative Affective Symptoms, Neuroticism, and Poor Quality of Life
- Influence of Positive and Negative Dimensions of Dementia Caregiving on Caregiver Well-Being and Satisfaction With Life: Findings From the IDEAL Study
- Caregiver influences on ‘living well’ for people with dementia: Findings from the IDEAL study
- Caregivers’ beliefs about dementia: findings from the IDEAL study
- Parkinson’s-adapted cognitive stimulation therapy: feasibility and acceptability in Lewy body spectrum disorders
- Individualised sensory intervention to improve quality of life in people with dementia and their companions (SENSE-Cog trial): study protocol for a randomised controlled trial
- Acceptability and feasibility of wearing activity monitors in community-dwelling older adults with dementia
- The relationship between the frequency of number‐puzzle use and baseline cognitive function in a large online sample of adults aged 50 and over
- Involving people living with dementia in research: an accessible modified Delphi survey for core outcome set development
- Effect of aging on post-saccadic oscillations
- What matters to people with memory problems, healthy volunteers and health and social care professionals in the context of developing treatment to prevent Alzheimer’s dementia? A qualitative study
- Involving people with dementia and their carers in dementia education for undergraduate healthcare professionals: a qualitative study of motivation to participate and experience
- Exploring the abilities of performing complex daily activities in dementia: the effects of supervision on remaining independent
- Physical activity engagement strategies in people with mild cognitive impairment or dementia – a focus group study
- Protocol for the process evaluation of the promoting activity, independence and stability in early dementia and mild cognitive impairment (PrAISED 2) randomised controlled trial
- Perspectives of healthcare professionals in England on falls interventions for people with dementia: a qualitative interview study (PDF)
- Memory, attention and fluency deficits in COPD may be a specific form of cognitive impairment
- Recruiting hard to reach populations to studies: breaking the silence: an example from a study that recruited people with dementia
Published 2018
- Barriers and Facilitators to the Access to and Use of Formal Dementia Care
- Mindfulness Training for People With Dementia and Their Caregivers
- Increased cerebral functional connectivity in ALS
- Cerebrospinal fluid macrophage biomarkers in amyotrophic lateral sclerosis
- Beta amyloid deposition maps onto hippocampal and subiculum atrophy in dementia with Lewy bodies
- Clinical and imaging correlates of amyloid deposition in dementia with Lewy bodies
- A study to test whether BI 409306 improves mental abilities in patients with mild Alzheimer’s disease and difficulties with mental functioning (PDF)
- Effects of Parkinson’s disease and dopamine on digit span measures of working memory
- DONIPAD study: A double-blind placebo-controlled cross-over clinical trial of DONepezil In Posterior cortical atrophy due to underlying Alzheimer’s Disease
- Effect of donepezil on transcranial magnetic stimulation parameters in Alzheimer’s disease
- Beliefs About Dementia: Development and Validation of the Representations and Adjustment to Dementia Index (RADIX)
- The impact of co-morbidity on the quality of life of people with dementia: findings from the IDEAL study
- IDEAL-2: Following the experiences of people with dementia and their primary carers to understand what contributes to living well with dementia and enhances active life
- Inequalities in living well with dementia—The impact of deprivation on well‐being, quality of life and life satisfaction: Results from the improving the experience of dementia and enhancing active life study (PDF)
- A qualitative study of female caregiving spouses’ experiences of intimate relationships as cognition declines in Parkinson’s disease
- Multidimensional Care Burden in Parkinson-Related Dementia
- Neuropsychiatric symptoms and cognitive profile in mild cognitive impairment with Lewy bodies (PDF)
- Diagnostic accuracy of dopaminergic imaging in prodromal dementia with Lewy bodies
- Tau burden and the functional connectome in Alzheimer’s disease and progressive supranuclear palsy
- Hippocampal Stratum Radiatum, Lacunosum and Moleculare Sparing in Mild Cognitive Impairment
- [11C]PK11195 binding in Alzheimer disease and progressive supranuclear palsy
- [18F]AV‐1451 binding is increased in frontotemporal dementia due to C9orf72 expansion
- Early microglial activation and peripheral inflammation in dementia with Lewy bodies
- In vivo coupling of tau pathology and cortical thinning in Alzheimer’s disease
- Predict Disease Progression With Reaction Rate Equation Modeling of Multimodal MRI and PET
- Are physiotherapists employing person-centred care for people with dementia? An exploratory qualitative study examining the experiences of people with dementia and their carers
- Internet-Based Interventions Aimed at Supporting Family Caregivers of People With Dementia: Systematic Review
- Reduced occipital GABA in Parkinson disease with visual hallucinations
- Visual and visuomotor interhemispheric transfer time in older adults (PDF)
- The nutritional care of people living with dementia at home: A scoping review
- Online assessment of risk factors for dementia and cognitive function in healthy adults (PDF)
- An online investigation of the relationship between the frequency of word puzzle use and cognitive function in a large sample of older adults
- Investigating the relationship between age of onset of depressive disorder and cognitive function
- Developing a core outcome set for people living with dementia at home in their neighbourhoods and communities: study protocol for use in the evaluation of non-pharmacological community-based health and social care interventions
- DREAMS-START (Dementia RElAted Manual for Sleep; STrAtegies for RelaTives) for people with dementia and sleep disturbances: a single-blind feasibility and acceptability randomized controlled trial
- Supporting Carers of People with Dementia : A mixed methods evaluation and feasibility study
- Trial of Solanezumab for Mild Dementia Due to Alzheimer’s Disease
- Selective forgetting of self‐threatening statements: Mnemic neglect for dementia information in people with mild dementia
- Clinical prevalence of Lewy body dementia
- Designing and Implementing a Home-Based Couple Management Guide for Couples Where One Partner has Dementia (DemPower): Protocol for a Nonrandomized Feasibility Trial
- Psychological and Mnemonic Benefits of Nostalgia for People with Dementia (PDF)
- Beliefs About Dementia: Development and Validation of the Representations and Adjustment to Dementia Index (RADIX)
- The social functioning in dementia scale (SF-DEM): Exploratory factor analysis and psychometric properties in mild, moderate, and severe dementia
- Understanding the quality of life of family carers of people with dementia: Development of a new conceptual framework
- Dementia And Physical Activity (DAPA) trial of moderate to high intensity exercise training for people with dementia: randomised controlled trial
- Involving minority ethnic communities and diverse experts by experience in dementia research: The Caregiving HOPE Study
- A development study and randomised feasibility trial of a tailored intervention to improve activity and reduce falls in older adults with mild cognitive impairment and mild dementia
- Promoting activity, independence and stability in early dementia and mild cognitive impairment (PrAISED): development of an intervention for people with mild cognitive impairment and dementia
- The Assessment of Cerebrovascular Response to a Language Task from the Addenbrooke’s Cognitive Examination in Cognitive Impairment: A Feasibility Functional Transcranial Doppler Ultrasonography Study
Published 2017
- Perspectives of policy and political decision makers on access to formal dementia care
- Caregiver profiles in dementia related to quality of life, depression and perseverance time in the European Actifcare study (PDF)
- Needs and quality of life of people with middle-stage dementia and their family carers from the European Actifcare study
- A Needs-led Framework for Understanding the Impact of Caring for a Family Member With Dementia
- Donepezil enhances understanding of degraded speech in Alzheimer’s disease
- Psychosocial therapy for Parkinson’s-related dementia: intervention development
- Psychosocial therapy for Parkinson’s-related dementia: study protocol for the INVEST randomised controlled trial
- Symptoms associated with Lewy body disease in mild cognitive impairment
- Peripheral inflammation in prodromal Alzheimer’s and Lewy body dementias
- Developing a framework for a novel multi-disciplinary, multi-agency intervention(s), to improve medication management in community-dwelling older people on complex medication regimens (MEMORABLE)––a realist synthesis
- Neuroimaging of Inflammation in Memory and Related Other Disorders (NIMROD) study protocol: a deep phenotyping cohort study of the role of brain inflammation in dementia, depression and other neurological illnesses
- Multi-modal MRI investigation of volumetric and microstructural changes in the hippocampus and its subfields in mild cognitive impairment, Alzheimer’s disease, and dementia with Lewy bodies
- 18F-AV-1451 positron emission tomography in Alzheimer’s disease and progressive supranuclear palsy
- [18F]AV-1451 binding in vivo mirrors the expected distribution of TDP-43 pathology in the semantic variant of primary progressive aphasia
- The development and preliminary psychometric properties of two positive psychology outcome measures for people with dementia: the PPOM and the EID-Q
- Increased Physical Fitness Is Associated with Higher Executive Functioning in People with Dementia
- Digital Support Platform: a qualitative research study investigating the feasibility of an internet-based, postdiagnostic support platform for families living with dementia (PDF)
- How people with dementia and their carers adapt their homes: A qualitative study. (PDF)
- Enablers and challenges to occupational therapists’ research engagement: A qualitative study (PDF)
- Perception and Reality of Cognitive Function: Information Processing Speed, Perceived Memory Function, and Perceived Task Difficulty in Older Adults
- Eye Gaze and Aging: Selective and Combined Effects of Working Memory and Inhibitory Control
- Living Life and Doing Things Together: collaborative research with couples where one partner has a diagnosis of dementia (PDF)
- A novel assessment and profiling of multidimensional apathy in Alzheimer’s disease (PDF)
- Hierarchical decline of the initiative and performance of complex activities of daily living in dementia (PDF)
- Deconstructing the performance of everyday activities: a case in dementia (PDF)
- Initiating activities of daily living contributes to well-being in people with dementia and their carers (PDF)
- Adherence support strategies for exercise interventions in people with mild cognitive impairment and dementia: A systematic review
Published 2016
- ACcess to Timely Formal Care
- [18F]AV‐1451 PET in behavioral variant frontotemporal dementia due to MAPT mutation
- Neuroinflammatory and morphological changes in late-life depression: the NIMROD study
- Community occupational therapy for people with dementia and family carers (COTiD-UK) versus treatment as usual (Valuing Active Life in Dementia [VALID] programme): study protocol for a randomised controlled trial
- Measuring Information Processing Speed in Mild Cognitive Impairment: Clinical Versus Research Dichotomy
- Sensitivity of the Mini-Mental State Examination, Montreal Cognitive Assessment and the Addenbrooke’s Cognitive Examination III to everyday activity impairments in dementia: An exploratory study
- Taking a positive spin: Preserved initiative and performance of everyday activities across mild Alzheimer’s, vascular, and mixed dementia (PDF)
- The newly revised interview for deteriorations in daily living activities in dementia (R-IDDD2): distinguishing initiative from performance at assessment