PHD student Jem Bhatt holds up a sign reading "Get involved in dementia research"

Research supported by University College London is investigating how people living with dementia talk about their diagnosis to others.

As part of this study, the team are inviting people with a primary diagnosis of dementia to share their experiences of stigma, by taking part in a questionnaire.

We spoke to PHD student Jem Bhatt, who is leading the study, to find out more.

What are the main aims of the study?

People often talk about the “stigma of dementia” but it can sometimes be hard to pin down what this means. Currently, there are no measures of stigma specifically for people living with dementia.

For this reason, the current study aims to test whether current “stigma questionnaires” are relevant and appropriate for people living with dementia.

What does it involve for a participant?

The study involves completing a set of questionnaires twice, once and then again 1-2 weeks later.

The questionnaires are focused around negative attitudes associated with dementia, and how people view themselves.

How long is the study for?

It should take approximately 30 to 40 minutes to complete the questionnaire each time.

Typically, it takes a bit longer the first time as there are a few additional questions, such as gender, age and informed consent.

What do you hope the outcomes of the study will be?

We hope participants enjoy completing the questionnaires.

By taking part, people will help develop a better research understanding of how stigma impacts people living with dementia. This will lead to developing better support for those who need it.

Where is the study based?

People can take part in the study online from anywhere in the UK. Just log in to your Join Dementia Research account and check your study matches.

If somebody lives in the London region it is also possible arrange a face-to-face session with a member of the research team instead.

Who can take part?

Anyone over the age of 18 who has a formal diagnosis of dementia can take part in this study.

Participants must have the capacity to give informed consent in order to be eligible.


You can see if you are eligible for this study or others around the UK by logging into your Join Dementia Research account.

Not registered with Join Dementia Research? Why not sign up today?