Manage how you hear from us

• What communications can I receive?
• How do I change what I receive?
• How can I remove myself from Join Dementia Research?

What communications can I receive?

Once you’ve signed up to Join Dementia Research, there are a variety of different ways you can choose to hear from us:

General updates and newsletter

If you sign up to our mailing list, we’ll try our best to keep you updated without bombarding you with emails. You’ll receive our newsletter rounding up our latest news, as well as the occasional survey invitation or service update.

Study alerts

Study alerts are a great way to make sure you never miss a potential study. If you have ticked the option to receive alerts, you’ll receive an email every time there’s a new study you might be able to take part in.

Contact with study teams

Once you match to a study and register your interest in taking part, you might be contacted directly by the team doing the research to explain more about the study. You can use your account settings to choose whether you’d most like this initial contact to be by phone, letter or email.

How do I change what I receive?

It’s up to you how you choose to hear from us. You can use your account to manage your settings, and you can change your settings at any time.

General updates and newsletter

To stop receiving general updates, follow these steps:

1. Login to Join Dementia Research.

2. Select “Update / Add information”.
   

3. Scroll down to the bottom of the page and click ‘Save and Continue’.
   
   Keep doing this until you arrive on your ‘Key Contacts’ page.
   

4. Scroll down to your Contact Preferences.
   

5. To unsubscribe from our general updates (newsletters etc), select ‘No’ under ‘Would the volunteer like to receive regular updates and information from Join Dementia Research by email (e.g. newsletters)?‘
   

6. Click ‘Save and Continue’.
   

Study alerts

To stop receiving study alerts, follow these steps:

1. Login to Join Dementia Research.

2. Scroll down to your Volunteer profile on the home page. Wait for your ‘Potential Study Matches’ list to load. This may take a moment.
   

3. When your matched studies have loaded, scroll to the bottom of the list. If the ‘Subscribe to study alerts for this volunteer‘ box is ticked, you will receive email study alerts. If it isn’t ticked, you will not receive these emails. As a default, this box is not ticked.
   
   or
   

Contact with study teams

To change how study teams get in touch in future, follow these steps:

1. Login to Join Dementia Research.

2. Select “Update / Add information”.
   

3. Scroll down to the bottom of the page and click ‘Save and Continue’.
   
   Keep doing this until you arrive on your ‘Key Contacts’ page.
   

4. Scroll down to your Contact Preferences.
   

5. Tick the boxes next to the ways you would like researchers to get in touch with you.
   

6. You can also choose when you’re happiest to be contacted. Tick the boxes next to the times of day you would like researchers to get in touch.
   

7. Click ‘Save and Continue’.
   

If you are already receiving emails from study teams, you will need to contact the team directly to stop receiving those messages.

How can I remove myself from Join Dementia Research?

We hope that you’ll enjoy being part of Join Dementia Research, but if you decide that you no longer wish to remain registered with the service, you or your loved ones can contact us and we will remove you from the system.

Once you do this, all of your identifiable information will be removed and future researchers will not be able to search for you. Please note that your data will be anonymised rather than deleted.

We’re working to make this process even easier – look out for more updates soon.

You can also contact us on behalf of someone who has passed away.