Last Review date: June 24

Freedom of Information Requests

The Freedom of Information Act 2000 is an Act of Parliament and the Environmental Information Regulations is EU legislation that creates a public “right of access” to information held by public authorities.

Join Dementia Research operates as part of the National Institute for Health and Care Research (NIHR) Research Delivery Network (RDN) on the behalf of the DHSC.

The DHSC takes full responsibility for responding to any Environmental Information Regulations or Freedom of Information requests. Further information on the Freedom on Information process can be found on the website.

Members of the public should direct any such request to the DHSC, either:

  • by emailing;
  • or writing to: Ministerial Correspondence and Public Enquiries Unit, Department of Health and Social Care, 39 Victoria Street, London, SW1H 0EU, United Kingdom.

All requests will be routed through to the DHSC, and responded to in accordance with the DHSC Enquiries Process. The Join Dementia Research service will supply DHSC with relevant information, and the DHSC will, in turn, respond back to the enquirer.

Subject Access Requests

Any request for personal information held about an individual user of Join Dementia Research must be handled in accordance with the GDPR and Data Protection Act 2018.

A subject access request is one of the main access rights of the Data Protection Act 2018. It gives people the right to access their personal information held and processed by any organisation.

Any individual whose data is being processed by Join Dementia Research can ask to see this or be provided with a copy of this within the relevant time frames provided by the Data Protection Act 2018 and GDPR (i.e. within one month of receipt of the request unless complex). Only information relating to the requester can be released.

For details of how to make subject access requests, please read our Privacy Policy.