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Understanding and adjusting to memory difficulties

2 November 2016

Dr Catherine Quinn, researcher for this study

When people develop a condition, such as dementia, they can respond to the changes they experience in very different ways. The findings from research in other health conditions suggests that how people understand their condition, its implications, and what can be done about it can have an impact on how people adjust to and cope […]

Book of You

28 July 2016

Logo - Book of You (1)

Book of You is a unique new study that is now recruiting through Join Dementia Research. The study is looking at whether a ‘digital life storybook’ (a collection of photos, words and narrations that reflect important aspects of a person’s life) can have a positive effect on the lives of people with dementia and their […]

‘LewyPro’

26 February 2016

The ‘LewyPro’ study is looking to improve diagnosis of Dementia with Lewy Bodies, a serious condition. Aims of the Study Dementia with Lewy Bodies (DLB) is the second most common cause of dementia in older people, after Alzheimer’s Disease. However, it is not yet well understood in the medical community, and can frequently be misdiagnosed […]

The HALL-VIS-ATT Study

The ‘HALL-VIS-ATT’ aims to help researchers and doctors understand the upsetting symptoms of hallucinations in dementia. Aims of the Study People with Parkinson’s Disease with Dementia, and people with Dementia with Lewy Bodies, often have distressing visual hallucinations. It is not known why these visual hallucinations occur. Some aspects of visual hallucinations are related to poor vision […]

The ‘AMPLE’ Study

The ‘AMPLE’ study, which is based at the University of Newcastle upon Tyne, investigates ‘amyloid imaging’ for the observable characteristics of Dementia with Lewy Bodies (DLB), which is the second most common cause of degenerative dementia in the UK. Beta-amyloid is a protein, deposits of which can be found in the brain of a person who has Alzheimer’s Disease. Until recently, […]

The ‘VEEG-Stim’ Study

The ‘VEEG-Stim’ study is aimed at using technology to help us understand what causes the upsetting visual hallucinations in some dementias. Aims of the Study Visual hallucinations are a common and often upsetting symptom of the ‘Lewy body dementias’, which includes Dementia with Lewy bodies and Parkinson’s disease dementia. However, very little is known about the […]

The ‘ACDC’ Study

The ‘ACDC’ Study is the very first study that hopes to reduce hallucinations that can occur as part of Lewy Body dementias. Aims of the Study People who have Lewy body dementia, either Parkinson’s disease dementia or dementia with Lewy bodies, can have hallucinations. These hallucinations are often visual and may be disturbing for patients. […]

VEEG-Stim study

‘Join dementia research’ is the new online service that will help volunteers discover and join research studies into dementia around the country. The VEEG-Stim study is aimed at using technology to help us understand what causes the upsetting visual hallucinations in some dementias. Aims of the Study Visual hallucinations are a common and often upsetting symptom […]

What studies are looking at dementia with Lewy bodies?

4 December 2015

Pound Hill Surgery

Dementia with Lewy bodies affects over 100,000 people in the UK, however it is difficult to recognise in clinical practice, with many cases currently undetected. It can also be difficult to distinguish Dementia with Lewy bodies from Alzheimer’s disease. Signs and symptoms People with dementia with Lewy bodies not only experience problems with memory and judgement, like those […]

Can heart scans support diagnosing Dementia with Lewy Bodies?

13 November 2015

Dr Joseph Kane

Dementia with Lewy bodies (DLB) affects over 100,000 people in the UK, however it is difficult to recognise in clinical practice, with many cases currently undetected. It can also be difficult to distinguish DLB from Alzheimer’s disease. Previous research studies have found that nerve damage can be detected in the hearts of people with DLB, with no such damage observed […]

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