The Influence of Relatives’ Expressed Emotion Study – now fully recruited

18 July 2016

We’re proud to announce that the Influence of Relatives’ Expressed Emotion study has recently signed up the total number of volunteers it requires after seeking participants through Join Dementia Research. The study sourced 60% of its volunteers using Join Dementia Research and was able to recruit the first participant within the first two weeks. The […]

Caregiving HOPE Study

5 July 2016

There are currently 670, 000 family members who provide support for a person living with dementia at home. As a result of an ageing population, more and more family members will be relied upon to provide care at home. Healthcare professionals and service providers often assume and take for granted that family members are willing […]

Promoting Independence in Dementia

14 April 2016

The Promoting Independence in Dementia (PRIDE) study is looking to find out how to best enable people to maintain their independence in the early stages of dementia. The study is made up of several projects looking to help people with dementia, and their family and friends, to live a fulfilling life. One of the first projects is […]

The ‘LMTM’ Study

26 February 2016

Research into new drugs for treating illnesses can be some of the most exciting studies carried out. Aims of the Study There is a rare form of dementia called Behavioural Frontotemporal Dementia, or bvFTD for short. It can strike anyone between the ages of 20 and 80, but primarily affects those in their 50s. Currently, […]

Finding ways to care for carers

4 February 2016

dementia care

A new study has been added to ‘Join dementia research’ that is finding out how to better support carers. The project, funded by Alzheimer’s Society, is aiming to find ways to help carers to access much-needed therapy and support in order to cope with feelings that can arise as a result of their caring role, […]

How can people with dementia be supported and treated in an acceptable way that is affordable?

16 December 2015

A new study to join Join Dementia Research is the MODEM: Comprehensive approach to modelling outcome and cost impacts of interventions for dementia study. It is one part of a larger MODEM project that will generate new evidence to help decision makers in the health and social care sectors to develop and implement strategies to […]

How can people with dementia and their carers be better supported after a diagnosis?

10 December 2015

The Influence of Relatives’ Expressed Emotion study is looking into how people with dementia and their carers can be better supported after a diagnosis. The research team hope that their research will help clinicians to gain a better insight into factors that influence wellbeing and adjustment, in order to develop methods of support and interventions. […]

Pioneering dementia programme to transform healthcare

16 October 2015

Time for Dementia is a brand new study on Join Dementia Research, that is calling families living with dementia in Surrey and Sussex to take part. The study is the first of its kind in the world, to help train the healthcare professionals of tomorrow and improve the way that people with dementia are cared […]

How do people with dementia and their carers feel about adapting their homes?

15 October 2015

Two thirds of people with dementia currently live at home. There is a wealth of information available from a variety of sources on how homes can be adapted to promote independence, reduce symptoms and maintain functional ability. Although this advice is available it is not known to what extent the advice is accessed or used […]

Looking at end of life care for people with dementia

17 June 2015


SEED (Supporting Excellence in End of Life Care in Dementia) is part of a five-year programme of research supporting professionals to deliver better quality, community-based end of life care for people with dementia and their families. We caught up with Chief Investigator, Louise Robinson, to find out more. So why this study? People with dementia already […]

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