Promoting Independence in Dementia
The Promoting Independence in Dementia (PRIDE) study is looking to find out how to best enable people to maintain their independence in the early stages of dementia. The study is made up of several projects looking to help people with dementia, and their family and friends, to live a fulfilling life. One of the first projects is to find out what people think about memory, what it means to them, how they manage any difficulties and what role it plays in their everyday life. We caught up with Chief Investigator, Professor Martin Orrell, to find out more.
What are the main aims of the PRIDE study?
We are interested in finding out what changes in memory mean to people. In this study we aim to talk to people about memory, to learn if they have difficulties with their memory and, if so, how they deal with those difficulties, and positive strategies to cope with them. We also want to talk to them about what is important in their daily life and what activities they value. We hope to use this information to develop ways to help other people with memory difficulties live well at home; this may include helping people maintain their physical activities, promote a healthy lifestyle and maintain social activities and relationships, and signposting them to local resources.
What does it involve for a participant?
Participants will take part in a one-to-one interview with a member of the research team. We will arrange a time and place for the interview that is convenient for the participant, which could be their home. Participants can choose to have someone with them. The interview should last no more than an hour. During the interview, we will ask about memory and the participant’s activities around the home and in their social life.
How long is the study for? / Is it a one-off visit?
The study will run until the summer of 2017. We hope to conduct two interviews with each person involved, 12 months apart.
What do you hope the outcomes of the study will be?
We hope to find out what people’s experiences and views of memory and memory difficulties are, and the strategies they use to cope can help us better understand what is important to people and to help us develop effective social guidance to help people with memory difficulties.
Where is the study based?
The study is mainly based in the Nottingham, London, and Norwich areas. We are recruiting people from these areas. The next two studies which are a part of this larger research project will be nationwide.
The study is looking for people from 6 different groups:
– People without dementia or memory problems
– People concerned about their memory
– People diagnosed with Mild Cognitive Impairment
– People newly diagnosed with dementia (within the last 2 years)
– People diagnosed with dementia (for over 2 years)
– Carers of people with dementia
The study is based at the University of Nottingham and funded by the Economic and Social Research Council and the National Institute for Health Research.
You can see if you are eligible for this study – and others around the nation by logging into your Join Dementia Research account.
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