Volunteer stories
Read the stories of those participating in dementia research; find out about their experiences and what first inspired them to take part in a research study.
Former PCSO volunteers for dementia research after diagnosis
26 July 2023

A former Police Community Support Officer (PCSO) has spoken about how volunteering for studies through Join Dementia Research has given him a sense of purpose after his Alzheimer’s disease diagnosis. Peter Middleton from Northamptonshire was diagnosed with early onset Alzheimer’s disease in 2018, aged 64. Diagnosis Peter said: “I had been a Police Community Support […]
Taking part in dementia research: Mary’s story
28 June 2023

Mary Stewart-David, a writer and consultant narratologist from South London, spoke movingly about her mother’s dementia diagnosis and how this inspired her to get involved in research. Mary said: “I got involved in research as a volunteer because I saw my mother through dementia. I am aware that it might affect me in the future. […]
Ten years in dementia research: Geoff and Susie’s story
17 May 2023

A husband and wife who received a dementia diagnosis in 2013 made a decision shortly after to take part in research to regain a sense of control. Ten years on and they are still embarking on trials, saying the experience has left them feeling empowered, supported and resilient. Diagnosis Geoff Fenwick formerly worked as a […]
Research Champion Wendy Mitchell
3 March 2023

Research Champion and Sunday Times best-selling author Wendy Mitchell was diagnosed with young onset dementia at the age of 58. Wendy, who was an NHS Manager for 20 years until 2015 recalls: “I was coming out of my office one day and I didn’t know who I was or who all the people around me […]
