MODEM logoA new study to join Join Dementia Research is the MODEM: Comprehensive approach to modelling outcome and cost impacts of interventions for dementia study. It is one part of a larger MODEM project that will generate new evidence to help decision makers in the health and social care sectors to develop and implement strategies to meet the needs and improve the wellbeing of people with dementia and their carers in ways that make better use of society’s resources.

The information collected will be used to inform policy and practice to ensure that people with memory difficulties and their families can be provided with good quality and affordable support and treatment in the future. We caught up with Dr Nicolas Farina, who is part of the research team for the study.

Dr Nicolas Farina

Dr Nicolas Farina

What are the main aims of the MODEM study?

MODEM aims to develop a model to predict how many people will have dementia, the support they might reasonably expect and the estimated costs of care services over the next 25 years. This is an exciting project, the first of its kind, and will provide policy recommendations for future governments to develop a guide for the public and support for experts working in the field of dementia.

What does it involve for a participant?

Two researchers will visit both the person with dementia and their carer in their home to ask a series of questions. These questions cover a number of topics including the health and wellbeing of the person with dementia as well as the needs and wellbeing of their carer.

We understand that to get the best quality information from the participant is dependent on how engaged they are with the research. Therefore we try to make participating in the MODEM study as pleasant as possible by creating a relaxed atmosphere and encouraging breaks when needed.

How long is the study for? Is it a one-off visit?

Participants are visited on two occasions, 12 months apart.

What do you hope the outcomes of the study will be?

This study is one part of a larger MODEM project, where the findings will feed into the development of a model as to how we offer effective support to people with dementia and their carers so they can live as fulfilling lives as possible into the coming decades.

Where is the study based?

The study team is based at the Centre for Dementia Studies, which is a joint venture between Brighton and Sussex Medical School and Sussex Partnership NHS Foundation Trust.

How has Join Dementia Research helped with recruitment?

The MODEM cohort study has quite a large recruitment target and Join Dementia Research has helped us get closer to this goal. Join Dementia Research is an easy to use platform which connects us directly with people that are interested in research. In addition, it provides us an opportunity to recruit individuals who may not regularly access health and care services, which we might miss through traditional recruitment strategies.


Participants need to live within East Sussex and West Sussex. Anyone with a diagnosis of dementia can take part in these regions. Participants will need an unpaid carer (such as a family member or friend) available.

The MODEM project is funded by the National Institute for Health Research and the Economic and Social Research Council.

Watch Professor Sube Banerjee, Chief Investigator of the study, talk more about the project:

Martin-In-GardenYou can see if you are eligible for this study – and others around the nation by logging into your Join Dementia Research account.
Still not registered with Join Dementia Research? Why not sign up today?