Can a digital platform be a useful tool for families living with dementia?
The Dementia Post Diagnostic Digital Platform study is looking to test whether a new digital platform of a website, an app and software is an effective post-diagnostic support tool for people with dementia and their families.
Research Fellow for the study, Dr Killin, fills us in with more information.
What are the main aims of The Dementia Post Diagnostic Digital Platform study?
The Digital Platform (DP) has been designed to support both people with dementia and their families. It is made up of three online resources:
Living It Up: a website which provides guides to local social events, encourages the use of email or video calling, and information about health and wellbeing, including dementia.
Jointly: an app designed to make caring easier. It combines group messaging with to-do and medication lists, a calendar, and a simple online care plan.
ClickGo: award-winning software that gives people more control over their support.
The DP is new, so the main aim of this study is to see what people think of it. We also want to see whether it has any additional benefits, like reducing the chance of someone having to be hospitalized, or having to stay in hospital for long. We hope that if enough people try out the DP and let us know what they think, we can find out what works best.
What does it involve for a participant?
Once a participant is signed up to the DP, all they have to do is use it as often as they like. After two months we will send some questionnaires for them to fill out with their caregiver or relative, asking them how they felt about using it. Once the questionnaire is done, there is nothing else for participants to do other than use DP as usual, even after the study is done.
How long is the study for?
At the start there is a one-off visit where researchers will come out to the participants’ homes and set them up with the DP and show them how it works. We have tablet computers for anyone who doesn’t have a computer with access to the internet.
Each participant is involved in the study for nine months, and in that time we check how often they use the DP, and, with their consent, how often they use NHS and social care services.
What do you hope the outcomes of the study will be?
People recently diagnosed to be living with mild or moderate dementia in Alzheimer’s disease, vascular dementia or mixed vascular and Alzheimer dementia, living in Lothian and who have at least one caregiver willing to participate in the study.
You can see if you are eligible for this study, as well as others around the nation, by logging into your Join Dementia Research account.
Not registered with Join Dementia Research? Why not sign up today?