Fewer than half of people diagnosed with dementia in England have a documented discussion about taking part in research. This is why early discussions around signing up to dementia research is important. We spoke with Susan Bradbury, a Clinical Research Practitioner and Dr Claire Pavlou, a Neuropsychologist to discuss how they speak to their patients […]

Research is vital in improving dementia diagnosis, treatment and care. However, many people who would like to take part in research simply do not know how to get involved. Healthcare professionals can play an important role in changing this. By connecting patients, carers, and families to opportunities through Join Dementia Research. Start conversations early Present […]

A finger prick blood test combined with online brain testing – all done from home – could identify people’s risk of developing dementia. A new study found that the level of proteins linked to dementia were linked to performance on a series of brain tests.  The researchers measured 2 proteins in the blood tests. These […]

Many people notice changes in their memory or concentration as they get older. It’s not always clear what is a normal part of ageing and what could be an early sign of dementia. The PROTECT study was created to help answer these questions. The study is hoping to improve our understanding of how to keep […]

Today, 55 million people around the world are living with dementia. This number is predicted to nearly triple by 2050 – reaching almost 140 million.  But, despite how common the condition is, there is still a lot of confusion around what dementia actually is. Separating fact from fiction helps people make informed choices, understand a […]

More people use wearable devices in their everyday lives, but how can these devices benefit people living with dementia? A new study aims to find out. Wearable devices in dementia care In dementia care, devices are commonly used to support safety and independence. This includes devices for location tracking or monitoring daily health. These tools […]

Dementia affects not only memory and cognition, but identity, relationships, confidence, and wellbeing. In this blog, Linda O’Raw, LEND Programme Manager, writes about the Lived Experience Narratives in Dementia (LEND) Programme. For many people, the period following diagnosis can feel particularly isolating, with limited support focused on how to live well with the condition. The […]

A man living with Alzheimer’s disease says his condition feels like he is “disappearing”. He is taking part in research as he seeks to benefit himself and others in the future. Alan Cope, 69, a former parish councillor, signed up to the READ-OUT – REAl world Dementia OUTcomes: Observational Study. The READ-OUT study aims to […]

In 2026, we are marking the 11th anniversary of Join Dementia Research. For over a decade, the service has helped people across the UK take part in vital dementia research. People can sign up to Join Dementia Research to show their interest in taking part in dementia research. Once signed up, they are matched to […]

John Desmond’s wife, Linda, was diagnosed with semantic dementia in 2021, at 67 years old. Semantic dementia, also known as frontotemporal dementia, is a rare form of the condition that affects Linda’s ability to use and understand words. Linda was working as a pharmacist in 2018 when she first noticed the changes in herself that […]