Search Results for: Frontotemporal dementia

When people hear the word ‘dementia,’ they often think of Alzheimer’s disease. But did you know there are different types of dementia, each with its own unique symptoms?  Here we take a look at 3 lesser known types: frontotemporal dementia, Lewy body dementia and vascular dementia. Frontotemporal dementia Frontotemporal dementia (FTD) affects the front and […]

As 2024 draws to a close, we look back at some of the breakthroughs in dementia research and the achievements and milestones of the Join Dementia Research service.  More volunteers sign up to Join Dementia Research than previous year More than 80,000 volunteers have now signed up to Join Dementia Research since its inception in […]

After John Hyde was diagnosed with frontotemporal dementia aged just 59, he had to retire from his job as a handyman. He immediately wanted to learn more about his condition and find ways to help others affected, so he signed up to Join Dementia Research. Frontotemporal dementia is a relatively uncommon form of dementia that […]

As Join Dementia Research celebrates 9 years of matching volunteers to dementia studies, it is timely to reflect on the progress dementia research has made both with our help and more broadly in recent years. It is encouraging to know that at any one time, there are around 150 dementia research studies underway in the […]

Researchers have identified a new form of dementia. Known as LATE, it shares many similarities with Alzheimer’s disease, but tends to lead to a more gradual decline in memory. LATE (limbic-predominant age-related TDP-43 encephalopathy) appears to be linked to the accumulation of a protein called TDP-43 in the brain, whereas Alzheimer’s is linked to the […]

A version of this article first appeared on the NIHR website. The National Institute for Health Research (NIHR) and the Economic and Social Research Council (ESRC) are creating a new online support network for people with young onset and rare dementias. The project was announced as part of a new £15 million research initiative to […]

The term ‘dementia’ describes a collection of symptoms, rather than a disease. These symptoms can include memory loss, difficulties with language, or problem solving, and are a result of damage to the brain caused by conditions like Alzheimer’s disease, or a stroke. There are many different types of dementia, depending on what has caused the […]

After a period of many online studies, we are pleased to share that researchers are increasingly inviting participants to take part in face to face studies.  Here are some examples of studies currently looking for volunteers to take part in different parts of the UK: Sleep, gut health and cognition study Insomnia in later life […]

These are the results of studies that people have participated in through Join Dementia Research that have been published so far. New studies will be added when they become available. Study results are published to share findings with other clinicians and researchers, so there may be some technical language. However we hope these results will […]

Research into new drugs for treating illnesses can be some of the most exciting studies carried out. Aims of the Study There is a rare form of dementia called Behavioural Frontotemporal Dementia, or bvFTD for short. It can strike anyone between the ages of 20 and 80, but primarily affects those in their 50s. Currently, […]