Search Results for: Frontotemporal dementia

In 2026, we are marking the 11th anniversary of Join Dementia Research. For over a decade, the service has helped people across the UK take part in vital dementia research. People can sign up to Join Dementia Research to show their interest in taking part in dementia research. Once signed up, they are matched to […]

John Desmond’s wife, Linda, was diagnosed with semantic dementia in 2021, at 67 years old. Semantic dementia, also known as frontotemporal dementia, is a rare form of the condition that affects Linda’s ability to use and understand words. Linda was working as a pharmacist in 2018 when she first noticed the changes in herself that […]

Dementia is not a normal part of getting older. It’s caused by illnesses that affect the brain, including the areas that control memory and thinking. These changes can develop gradually over time. There are currently no treatments available on the NHS that can slow down, stop or prevent the condition. However, there are now more […]

New research looking at music therapy has found that it could improve care and reduce distress for people living with dementia. The research has benefitted patients on dementia wards, including Richard. He was diagnosed with frontotemporal dementia in 2022. His wife, Suzanne, a Special Needs Consultant from Cambridge, says that the music therapy is “a […]

When people hear the word ‘dementia,’ they often think of Alzheimer’s disease. But did you know there are different types of dementia, each with its own unique symptoms?  Here we take a look at 3 lesser known types: frontotemporal dementia, Lewy body dementia and vascular dementia. Frontotemporal dementia Frontotemporal dementia (FTD) affects the front and […]

As 2024 draws to a close, we look back at some of the breakthroughs in dementia research and the achievements and milestones of the Join Dementia Research service.  More volunteers sign up to Join Dementia Research than previous year More than 80,000 volunteers have now signed up to Join Dementia Research since its inception in […]

After John Hyde was diagnosed with frontotemporal dementia aged just 59, he had to retire from his job as a handyman. He immediately wanted to learn more about his condition and find ways to help others affected, so he signed up to Join Dementia Research. Frontotemporal dementia is a relatively uncommon form of dementia that […]

As Join Dementia Research celebrates 9 years of matching volunteers to dementia studies, it is timely to reflect on the progress dementia research has made both with our help and more broadly in recent years. It is encouraging to know that at any one time, there are around 150 dementia research studies underway in the […]

Researchers have identified a new form of dementia. Known as LATE, it shares many similarities with Alzheimer’s disease, but tends to lead to a more gradual decline in memory. LATE (limbic-predominant age-related TDP-43 encephalopathy) appears to be linked to the accumulation of a protein called TDP-43 in the brain, whereas Alzheimer’s is linked to the […]

A version of this article first appeared on the NIHR website. The National Institute for Health Research (NIHR) and the Economic and Social Research Council (ESRC) are creating a new online support network for people with young onset and rare dementias. The project was announced as part of a new £15 million research initiative to […]