Combined cells magentaAs the year draws to a close we’ve been reflecting on how much can happen in 12 months. World events aside, there’s been plenty of news about dementia research. Every step we take will hopefully bring us closer to better ways to prevent, treat and care for people with dementia.


  • Back in February we celebrated the first year anniversary of Join Dementia Research, and it has continued to go from strength to strength throughout the year.
  • In May the government, together with our partners Alzheimer’s Research UK and Alzheimer’s Society, announced their collective investment of a quarter of a billion pounds into a the UK’s first Dementia Research Institute  aiming to transform the landscape of dementia research and secure the UK’s reputation as a world leader in dementia research.
  • Then in August it was announced that a new landmark £6.9million research project has been designed to identify measurable characteristics, known as biomarkers, which can detect the occurrence of Alzheimer’s disease very early on in the progression of the disease – when a person may have no obvious symptoms. Towards the end of the month, the positive early phase results for use of a drug called Aducanumab hit the headlines. While this was good news, there’s more research needed to determine if it can slow progression of early Alzheimer’s disease, as well as whether it’s safe to use in patients.
  • In November we learned that dementia is now recorded as the leading cause of death in England and Wales. We also heard the disappointing news that a trial looking at a drug called solanezumab didn’t deliver the benefit for people living with Alzheimer’s disease that was much hoped for. While this is not the news many of us wished for, other studies are taking place and the search for new and better ways to prevent treat and care for people with dementia continues.


Join Dementia Research has grown steadily over the year. We now have more than 25,000 people registered, and more than 6000 have already taken part in research studies. Since starting, more than 100 studies have used Join Dementia Research to find people willing to take part in their research. Having a large group of people, who are interested in helping make research happen, is helping accelerate progress against dementia.

This success is down to you! Thank you to everyone who has registered their interest in taking part in research. If you’ve not matched to any studies yet, thank you for your patience. More and more studies are being added to the service all the time. The best way to make sure you match to suitable studies is to log in and check all your details are still up to date. Also, look out for updates to the website in the new year where will be sharing more dementia initiatives that may be of interest.


With best wishes for Christmas and the New Year to you and your families.

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