The TASKED Study
As well as causing memory problems, dementia can make it hard for people to carry out everyday tasks. This affects quality of life for both the patient and their family carer, as well as being expensive for the NHS and social services. The difficulties people with dementia have with daily tasks are partly to do with the disease’s effect on the brain.
The TASKED Study is looking at how factors such as changes to the home environment and the role of carers can help to help improve the quality of life for people with dementia.
We caught up with Professor Eneida Mioshi, the Chief Investigator for this study, to find out more.
What are the main aims of the study?
The main aim of the study is to see which factors influence the ability to perform everyday activities, such as preparing a meal or managing the finances.
What does it involve for a participant?
There are two parts to the study which we are recruiting participants for now. The main part of the study involves completing some questionnaires on everyday activity performance, well-being, carer managing strategies, and some questions on the person with dementia’s memory and cognition. We are aiming to follow up participants after 12 months to see how everyday activity performance might have changed.
The second part of the study that we are currently recruiting for involves direct observations of the person with dementia’s ability to perform a couple of everyday activities.
People who participate in the first part do not have to participate in the second part of the study.
How long is the study for? Is it a one-off visit?
The first part of the study is a one-off visit now and a follow-up visit 12 months later, each session lasting about 2 hours. The second part of the study entails one visit at home, and one visit to the University of East Anglia, both sessions lasting approximately one hour.
What do you hope the outcomes of the study will be?
We are hoping to establish the factors that contribute to people with dementia struggling performing everyday activities. Increased dependency in everyday life is a major symptom of dementia, and in doing this study we hope to find a way of helping people with dementia, and their carers, to maintain independence for as long as possible. The final element of this study will be the development of a toolkit to help people with dementia and their carers with this better.
Where is the study based?
The first part of the study will take place in the person with dementia’s and their carer’s home. The second part of the study will also take place in the participant’s home, as well as on University of East Anglia premises.
You can see if you are eligible for this study, as well as others around the nation, by logging into your Join Dementia Research account.
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