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Coordinating care for people with long term conditions and dementia

1 June 2016

A recent NIHR study has found new evidence which shows that almost one fifth of people with dementia also have other serious conditions such as stroke, diabetes and visual impairment. Services are not currently designed to provide adequate integrated care for people with dementia plus other conditions. For instance, people with dementia are less likely […]

BBC Horizon – ‘Curing Alzheimer’s’

12 May 2016

A recent episode of BBC Horizon (aired at 8pm on 12 May) investigated research into Alzheimer’s Disease and looked at the exciting advancements that are being made in the bid to find a cure. The programme featured a range of different studies into dementia, including the UK-based GREAT Study which has recruited participants using Join […]

‘Join dementia research’ in Scotland with the Glasgow Memory Clinic

20 March 2015

Today 90,000 people in Scotland are living with dementia, and that figure is set to rise. Finding better ways to prevent and treat people with dementia, and ways to improve care and diagnosis are vitally important, and research is at the heart of the solution. Scotland has a fantastic track record in the delivery of dementia research, and this is set […]

‘Join dementia research’ Champion – Dianna Moylan

18 March 2015

We’re fortunate to have a team of dedicated champions who are helping to spread the word about the work of ‘Join dementia research’. Continuing our series on meeting these ‘Join dementia research’ Champions, this week we hear from Dianna Moylan. “When my mother, at a little over sixty, began to show signs of forgetfulness, we accommodated […]

The Lundbeck Starbeam Study

13 March 2015

‘Join dementia research’ is a brand new online service, allowing volunteers for studies to be connected with researchers around the country. We’re looking at a study that has just been added to the site, and is recruiting for volunteers now! The purpose of the study is to find out whether a new research drug, given […]

First South West ‘Join dementia research’ match for dementia research study

12 March 2015

The first Devon couple to be matched with a dementia research study through ‘Join dementia research’ have shared their experience as a patient and a carer. David and Jan Barwick registered their interest in participating in research with ‘Join dementia research’ through Alzheimer’s Society website. They have already contributed to a national research initiative called The IDEAL Study […]

Dementia Research in the North East

10 March 2015

The first volunteer to ‘Join dementia research’ in the North-East region has already participated in a study. Mr. Jerry Wilkins has been helping with research into Lewy Body Dementia by taking part in the AC-DC Study, which hopes to address the upsetting hallucinations that can accompany the condition. You can read about his experiences here. Why […]

Join Dementia Research – The Northwest and nationwide!

4 March 2015

Welcome to ‘Join dementia research’, where we help volunteers connect with researchers, to work together on important studies into dementia. Some of our volunteers are leading the way by becoming Champions, helping others understand the benefits of participating in research. A former Group Technical Director of a public computing company, after retirement Peter Ashley was diagnosed […]

How Jo Rodda & a London Trust (NELFT) helped pilot ‘Join dementia research’

26 February 2015

‘Join dementia research’ is now active nationwide, connecting volunteers and research staff on dementia studies around the country! We’ve been talking to some of the people who first trialled the service. When a Trust is needed to trial a new research service that will be rolled out nationally, Dr. Jo Rodda knows why North-East London Foundation […]

Susie Hewer championing ‘Join dementia research’

24 February 2015

57 year old Susie Hewer from East Sussex was a full-time carer for her mother, Peggy, who lived with vascular dementia for many years. Since her mother’s death in 2005, Susie has been a Champion of Alzheimer’s Research UK, speaking out about dementia and the need for research. Known as the ‘Extreme knitting Redhead’ she […]

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