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LINKAGE Camden Study

11 April 2017

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Delirium is a medical term used to describe a change in brain function which makes a person become suddenly confused. Their behaviour and concentration may also be affected. It can make people feel frightened, restless and suspicious. The symptoms can come on quickly and change from hour to hour. It is very common, particularly among […]

Psychological Stress – Carers of those with Dementia

22 February 2017

Amelia Stone, Chief Investigator on this study

There are currently 550,000 carers in England, who provide essential primary care to individuals living with a diagnosis of dementia. This study will help individuals taking part to identify any current stress they might be under, the factors which may be affecting it, and how it may be improved. We caught up with Amelia Stone, […]

Spatial Navigation in Pre-symptomatic Alzheimer’s Disease

15 February 2017

Getting lost is one of the most common and distressing symptoms for Alzheimer’s disease (AD) patients and their families, often involving the police and in tragic cases resulting in death. However, the underlying reasons why patients are getting lost are virtually unknown. One reason for this limited knowledge, is that it is not clear how […]

What can best predict the decline of memory and thinking?

10 February 2017

The CHARIOT-PRO team

Identifying opportunities for the right kind of effective intervention to prevent or delay Alzheimer’s disease is important. The CHARIOT-PRO study is therefore looking to investigate what tests of cognition, memory, thinking, problem solving and everyday functions, together with certain biological factors, best predict the decline of memory and thinking abilities. The study’s co-ordinator, Dr Natalia […]

Online Communication in Everyday Social Life

7 February 2017

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There are approximately 670,000 carers of people with dementia in the UK. People who support, care for, or represent people with dementia respond to the situation in very different ways. One challenge that carers often face is in maintaining social relationships or making new relationships. It can also be difficult to communicate to others how […]

The DECIDE Study

30 December 2016

Dr Penny Wright, Chief Investigator for the DECIDE study

The number of people living with dementia in the UK is rising. Friends and family provide much of the care. Maintaining carer quality of life and finding a way of assessing it are important for the carers, those cared for, and for society. There are existing questionnaires used for dementia carer assessment but how good they […]

Care for people with Dementia given by Relatives at the End of life: The CADRE Study

23 November 2016

Dr Nathan Davies, researcher on this study

Around two thirds of people with dementia live in the community with the majority of their care provided by friends or family. Previous evidence suggests that family carers have a variety of support needs which differ throughout the different stages of dementia. These support needs are often not met, including practical as well as emotional […]

Super Smellers study

10 October 2016

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This study is investigating whether Parkinson’s disease can be diagnosed as a result of changes in the skin. It is looking for healthy volunteers who may be able to take part via Join Dementia Research. Through outreach activities in the Parkinson’s disease community, a woman has been identified who claims to be able to detect […]

The Rhapsody Project

18 August 2016

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The Rhapsody Project is an EU research project funded by the Joint Programme for Neurodegenerative Diseases. They are looking for volunteers to test a new online source of information and support designed for carers of people with young onset dementia. The project forms a European collaboration across six countries (England, France, Germany, the Netherlands, Portugal […]

Book of You

28 July 2016

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Book of You is a unique new study that is now recruiting through Join Dementia Research. The study is looking at whether a ‘digital life storybook’ (a collection of photos, words and narrations that reflect important aspects of a person’s life) can have a positive effect on the lives of people with dementia and their […]

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