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Partners of people with Parkinson’s-related dementia: A postal questionnaire study

24 November 2017

Parkinson

Care provision in Parkinson’s-related dementias is physically demanding and mentally exhausting contributing to higher burden and stress in the partner. Parkinson’s disease dementia and dementia with Lewy bodies can be physically and mentally disabling for both members of the couple. Care partners play a substantial role in supporting with various activities of daily living and […]

Super Smellers study

10 October 2016

This study is investigating whether Parkinson’s disease can be diagnosed as a result of changes in the skin. It is looking for healthy volunteers who may be able to take part via Join Dementia Research. Through outreach activities in the Parkinson’s disease community, a woman has been identified who claims to be able to detect […]

The HALL-VIS-ATT Study

26 February 2016

The ‘HALL-VIS-ATT’ aims to help researchers and doctors understand the upsetting symptoms of hallucinations in dementia. Aims of the Study People with Parkinson’s Disease with Dementia, and people with Dementia with Lewy Bodies, often have distressing visual hallucinations. It is not known why these visual hallucinations occur. Some aspects of visual hallucinations are related to poor vision […]

The ‘VEEG-Stim’ Study

The ‘VEEG-Stim’ study is aimed at using technology to help us understand what causes the upsetting visual hallucinations in some dementias. Aims of the Study Visual hallucinations are a common and often upsetting symptom of the ‘Lewy body dementias’, which includes Dementia with Lewy bodies and Parkinson’s disease dementia. However, very little is known about the […]

The ‘ACDC’ Study

The ‘ACDC’ Study is the very first study that hopes to reduce hallucinations that can occur as part of Lewy Body dementias. Aims of the Study People who have Lewy body dementia, either Parkinson’s disease dementia or dementia with Lewy bodies, can have hallucinations. These hallucinations are often visual and may be disturbing for patients. […]

The SHAPED Study

This study will look into the often distressing symptom that affects up to two million people in the UK – visual hallucinations. Aims of the Study We have looked previously at studies into hallucinations, which are common to people with dementia. Researchers are now broadening their work into more conditions that exhibit hallucinations – such […]

VEEG-Stim study

‘Join dementia research’ is the new online service that will help volunteers discover and join research studies into dementia around the country. The VEEG-Stim study is aimed at using technology to help us understand what causes the upsetting visual hallucinations in some dementias. Aims of the Study Visual hallucinations are a common and often upsetting symptom […]

Championing ‘Join dementia research’ in the North East

23 January 2015

Very soon ‘Join dementia research’ will be nationally launched as an online service, helping to connect volunteers with researchers who are working on ways to understand and treat dementias. We recently spoke to volunteer Andrew Brown, who is also one of our Champions in the North East, explaining to people and the press about the […]

#24DaysOfDementiaResearch – The SHAPED Study

23 December 2014

We are now at the end of #24DaysOfDementiaResearch, profiling one research study each day that is available on Join Dementia Research – the new online service that connects volunteers with researchers around the country. Today’s study will look into the often distressing symptom that affects up to two million people in the UK – visual hallucinations. […]

#24DaysOfDementiaResearch – The ‘ACDC’ Study

19 December 2014

Yesterday, as part of #24DaysOfDementiaResearch we looked at a study on ‘Join dementia research’ investigating the often upsetting hallucinations that can occur as part of Lewy Body dementias. Today, we can examine the very first study that hopes to reduce these hallucinations. All of these studies are available on ‘Join dementia research’, the new online […]

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