Archives

What’s that study? Living Alone with Dementia

18 October 2018

Courtney Poole, leader of the 'Living Alone With Dementia' study

We caught up with Courtney Poole, PhD student at the University of Coventry, who is leading the ‘Living Alone with Dementia’ study. What are the main aims of ‘Living Alone with Dementia? This study aims to learn about the experience of living alone with dementia. It is thought that around a third of people with dementia […]

Guest blog: Simon Denegri

13 August 2018

Simon Denegri, OBE, NIHR National Director for Patients, Carers and the Public

It’s been an exciting few months for Join Dementia Research. Over 10,000 volunteers have now been placed in dementia studies, the NHS turned 70, and NICE guidelines recommend that everyone with dementia should be told about opportunities for research. In our first guest blog, Simon Denegri OBE from the National Institute of Health Research (NIHR) reflects […]

Dementia 2020 Engagement Panel: phase 2 now open

9 August 2018

Man in shirt completing paper questionnaire

Share your dementia experience with the Department of Health and Social Care The Department of Health and Social Care want a better understanding of the experiences and needs of people living with dementia, in order to shape better policies. That’s why they have commissioned Opinion Research Services (ORS) to find out more on their behalf. […]

What’s that study? Generation for Generation

16 July 2018

Generation for Generation study logo

We caught up with Anna Krzeczkowska, PhD student at the University of Strathclyde, who is leading the ‘Generation for Generation’ study. What are the main aims of Generation for Generation? ‘Generation for Generation’ is designed to promote health and wellbeing in adults aged 60 and above and to improve children’s success in school. It aims […]

10,000 research participants recruited through Join Dementia Research

3 July 2018

Stats released today, Tuesday 3 July 2018, show that over 10,000 study participants have been involved in vital dementia research thanks to the innovative Join Dementia Research service from the National Institute of Health Research (NIHR). This fantastic news comes in the wake of new guidance released by NICE in June 2018. This guidance encouraged […]

Spread the word about dementia research: an interview with Professor Ashley Baldwin

28 June 2018

Professor Ashley Baldwin, Consultant Psychiatrist at North West Boroughs Healthcare NHS Foundation Trust

Dementia research involves a lot of teamwork. Doctors, scientists, researchers, nurses, assistants and, of course, people with dementia all join in. The more people who get involved in research, the more chance we have of understanding what causes dementia. This will allow us to develop effective treatments, improve care and hopefully one day find a […]

Proud to help future generations: Carol’s story

15 June 2018

Carol and Bryan Simcock in the garden

A grandmother living with mild Alzheimer’s disease in Greater Manchester is proud to be taking part in clinical research to help future generations. Carol Simcock, 71, lives in Handforth, Cheshire, with her husband Bryan, 78. Carol’s dementia experience Up until her retirement, Carol, a mum-of-two and grandmother-of-two, worked as a secretary and later as a […]

Join Dementia Research: an Occupational Therapist’s viewpoint

4 June 2018

Carol Duff, Occupational Therapist

Carol Duff has worked as an occupational therapist at the NHS for over 25 years. During that time she has supported many people experiencing the process of receiving a diagnosis of dementia. Occupational therapists like Carol work with individuals living with dementia and their caregivers to explore how memory changes affect function. They then present […]

Living with dementia: Phil and Audrey’s experience

24 May 2018

We often forget that for people living with dementia, they are not the only ones who are affected by the disease. It affects their family and the people around them. Hear from Phil, who was diagnosed with Alzheimer’s and Audrey, who cares for him. Listen to why they feel dementia research is not just important for […]

Turning a negative into a positive: Annie and Roger’s dementia research journey

22 May 2018

This Dementia Action Week we’re showcasing how you can take action to beat dementia Annie Paton was recently diagnosed with dementia in 2013 but since then she’s been taking part in research studies such as The IDEAL study,  to turn her diagnosis and experience into something that can help people living with dementia in the […]

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