Archives

Care for people with Dementia given by Relatives at the End of life: The CADRE Study

23 November 2016

Around two thirds of people with dementia live in the community with the majority of their care provided by friends or family. Previous evidence suggests that family carers have a variety of support needs which differ throughout the different stages of dementia. These support needs are often not met, including practical as well as emotional […]

What are the experiences of people who care for someone with dementia?

14 November 2016

Carers of people with dementia often have to organise and manage support and services for the person with dementia. By improving understanding of such factors, future interventions and policies can be developed to address these needs. The Carer Experiences study, on Join Dementia Research, will therefore explore the experience of people who care for someone […]

Can a digital platform be a useful tool for families living with dementia?

5 October 2016

The Dementia Post Diagnostic Digital Platform study is looking to test whether a new digital platform of a website, an app and software is an effective post-diagnostic support tool for people with dementia and their families. Research Fellow for the study, Dr Killin, fills us in with more information. What are the main aims of […]

The TASKED Study

15 September 2016

As well as causing memory problems, dementia can make it hard for people to carry out everyday tasks. This affects quality of life for both the patient and their family carer, as well as being expensive for the NHS and social services. The difficulties people with dementia have with daily tasks are partly to do […]

Relational Change and Grief in Dementia

6 September 2016

The Relational Change and Grief in Dementia study is looking to gain information that will help professionals give advice to those who are newly diagnosed with dementia about what might help them and their family carer maintain their relationship. In order to do this, the study team are aiming to gather information from people with […]

Demotivation in Dementia: Development and Validation of a New Scale

31 August 2016

Demotivation, or apathy, is common and observed in different neurodegenerative diseases. It is defined by a lack of motivation that can be seen in all aspects of an individual’s functioning. The Demotivation in Dementia: Development and Validation of a New Scale study is looking to explore different types of apathy/demotivation in people living with Alzheimer’s […]

The Rhapsody Project

18 August 2016

The Rhapsody Project is an EU research project funded by the Joint Programme for Neurodegenerative Diseases. They are looking for volunteers to test a new online source of information and support designed for carers of people with young onset dementia. The project forms a European collaboration across six countries (England, France, Germany, the Netherlands, Portugal […]

The Playlist for Life study

5 August 2016

Everyone has a song that takes them back to a person, place or time, cheers them up or calms them down. Listening to such personally meaningful music can have powerful benefits for those living with dementia. The Playlist for Life study is looking at these benefits and identifying the effects they can have on people […]

Book of You

28 July 2016

Book of You is a unique new study that is now recruiting through Join Dementia Research. The study is looking at whether a ‘digital life storybook’ (a collection of photos, words and narrations that reflect important aspects of a person’s life) can have a positive effect on the lives of people with dementia and their […]

The Influence of Relatives’ Expressed Emotion Study – now fully recruited

18 July 2016

We’re proud to announce that the Influence of Relatives’ Expressed Emotion study has recently signed up the total number of volunteers it requires after seeking participants through Join Dementia Research. The study sourced 60% of its volunteers using Join Dementia Research and was able to recruit the first participant within the first two weeks. The […]

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