NICEThe National Institute for Health and Care Excellence (NICE) is producing guidance to ensure people with dementia get the best assessment, management and support from health and care staff.

NICE is currently consulting on this guidance with an open consultation, to improve care by making recommendations on training staff and on helping carers to support people living with dementia.

In particular, the guideline addresses how dementia should be assessed and diagnosed, and covers person-centred care and support. Principles of this care maintain the human value and individuality of the person living with dementia. Also, they assert the importance of the person’s perspective and of all their relationships and interactions. This is why a consistent part of it regards the involvement of people with dementia in decision-making, both encouraging patients to give their own views, and providing all the appropriate information (including written information at the moment of diagnosis).

The consultation also addresses care coordination and staff training, and how dementia may impact on the care offered for other conditions. This kind of support does not include just pharmaceutical interventions, but also aims to make sure that all the services are accessible to everyone, and offering a range of activities and interventions to promote cognition, independence and wellbeing.

Research as a standard part of care?

We believe that making people living with dementia and their carers aware of how to get involved in research either at the point of diagnosis or as part of their support after diagnosis, should be something that is consistently offered. Healthcare professionals should provide information about Join Dementia Research and support patients and carers interested in signing up and finding out more about research opportunities. If this were to be included in NICE guidelines, we could improve the awareness of dementia research and Join Dementia Research as one of the ways to take part.

Your chance to comment

Please comment on the consultation, giving your views on whether healthcare professionals should provide information about Join Dementia Research at point of diagnosis and as part of their support after diagnosis. Feedback is welcome from all those living with dementia, as well as their families and carers, and health and care professionals.

When does the consultation end?

This stage of the consultation closes on 13 February, and the results will be published in June. All the material already produced is available for consultation on the Institute’s website. For any queries, please email Dementia@nice.nhs.uk.