JDR_cmykWe’re fortunate to have a team of dedicated champions who are helping to spread the word about the work of ‘Join dementia research’.

Continuing our series on meeting these ‘Join dementia research’ Champions, this week we hear from Dianna Moylan.


Dianna Moylen (1)“When my mother, at a little over sixty, began to show signs of forgetfulness, we accommodated it for a while. I would help her (over the phone, several times a week) switch on her electric stove at the wall. My father had been pretty forceful about switching off appliances that were not being used, and I think she felt she had to obey his instructions, though he was not alive any more.

In a few years she was going out for a walk and losing herself on the way home. We did all we could to keep her in her own home, but she needed care and ultimately it was arranged. She never believed she was in her own home, though she lived there for the rest of her life. She died at 98, not knowing who she was, not speaking, not able to feed herself.

That’s not how it should be. After she died I found out how to will my brain to research (I assured my little grand-daughter it would be after my death) and became involved in the world of dementia research.

This new initiative, ‘Join dementia research’, is exactly what is needed to promote the research that is so desperately required. Not enough good research has been done, though many medical scientists believe a cure to be just round the corner. This service encourages both those with dementias of all kinds, and those without, to offer themselves to researchers who will, they believe, find a cure.

It won’t be tomorrow, nor probably next month, but a cure will come and those suffering from this terrible disease and their families will perceive a light in the tunnel.DiannaMoylen_quote

What research has discovered seems to suggest there is no way back when the disease has taken hold. But perhaps that is going to be proved wrong – who knows?

However, the next generation of older people, hopefully the one I belong to, may be able to find the right treatment to spare them the desperate decline that those suffering now endure.”

You can read Dianna’s full article by visiting the National Institute for Health Research: Clinical Research Network website.


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Want to find out more about ‘Join dementia research’? Why not browse our website and check out ‘Why sign up?’.

Please help us spread the word.

Have you been involved in a study on the service? What did you learn? If you are interested in telling your story, please complete the online sign up form.

If you would like to share your story, please email us at comms.jdr@nihr.ac.uk. Please follow us on Facebook + Twitter and share your story!