How do people with early stage dementia respond to offers of support and services?
It is unclear why some people living with early stage dementia take up offers intervention and support and others do not.
Government health policy recommends that the NHS offer support to people after they have received a diagnosis of dementia. There is also evidence that some (non-drug based) interventions developed for people with early stage dementia, living in the community, can help improve or maintain cognitive skills (such as memory and concentration), the quality of their lives and their level of independence with daily living skills. Yet, NHS provision of such services is still developing, and some people decide not to take up the offer.
What are the main aims of the study?
The “Take up of psychosocial interventions for early stage dementia” study aims to explore and understand how people living with early stage dementia, who have received a diagnosis in the last two years, respond to offers of support or services.
What does it involve for a participant?
The study involves only one face to face interview. Participants will be interviewed about their life after receiving a diagnosis of dementia, and any services or support that may have been offered (particularly support other than medication). They will be also asked to share their views about the kind of services that they think other people may like and could support people with dementia after diagnosis.
Interviews will be carried out in people’s own homes or a location of their choice, at a time convenient to them and will last up to one hour. Interviews would be audio-recorded if people are happy with this.
If a person with dementia has a family carer and prefers to be interviewed with them, then joint interviews will be held. NHS staff working with people with dementia and their families will also be interviewed as part of this project.
How long is the study for?
The study is recruiting now, and people can participate in interviews up until April 2018. It will be completed by 2020.
What do you hope the outcomes of the study will be?
Whilst there are no immediate benefits for individuals, it is hoped this research will contribute to improving understanding of what helps people with dementia take up offers of support, and that people with dementia may enjoy being interviewed and sharing their experience.
Where is the study based?
This study is a PhD research project, based at the University of Sheffield.
Who can take part? (eligibility criteria)
Researchers are looking for people who have received a diagnosis of dementia within the last two years and are living in the community. Family carers (meaning spouses, relatives, or friends, over 18 years old) can assist, if the person with dementia wishes to be interviewed with them.
Volunteers need to be able to give informed consent to participate and be able and willing to participate in an interview either alone or with their family carer. People with dementia who live in nursing or residential care, or are living with severe dementia, are not suitable to take part in this research.
Sign up to Join Dementia Research.