Dementia researchers in the East of England have hit a key milestone with over 1000 people in the region signed up to Join Dementia Research since launching a year ago.
One of the studies recruiting for volunteers in the East of England is called IDEAL, which is identifying what changes can take place in the home and in the community to help people with dementia to live well. The study is looking for people with any form of dementia and their carers to take part in interviews in their own homes.
The 1000-plus volunteers who have already registered are a mix of those people who have been diagnosed with dementia, carers of people with dementia and healthy members of the public who want to help push dementia research forward. Vital studies in early diagnosis, prevention and new treatments are making good progress but more volunteers are needed to sign up.

Ben-Underwood

Dr Ben Underwood, NIHR Clinical Lead for dementia research in the Eastern region

Dr Ben Underwood is a NIHR’s Clinical Lead for dementia research in the Eastern region and Consultant Psychiatrist at Cambridgeshire and Peterborough NHS Foundation Trust. He commented on the success so far, saying

“The Eastern region and Cambridge in particular is an extremely active centre for dementia research. We currently have more than a dozen dementia studies running and are actively using Join Dementia Research to recruit to them, to a point where we have already exceeded this year’s target for recruitment via the service. We are always grateful to the patients, caregivers and other members of the public who take part in these studies. Join Dementia Research provides a quick and easy way of accessing all the latest studies in dementia and means that people are automatically contacted whenever any new studies come up”.

Chris Carling, Join Dementia Research Champion

Chris Carling, Join Dementia Research Champion

As Join Dementia Research Champion for the Eastern Region, volunteer Chris Carling is an active promoter of the service. She said,

“Both my parents had dementia and we were effectively told nothing could be done for them. My aim in promoting Join Dementia Research is to work towards a time when something can be done – and this will be through research and more people taking part in research.”

Dr Laura Phipps of Alzheimer’s Research UK, the UK’s leading dementia research charity, said

“Join Dementia Research gives everyone a great opportunity to play a role in pioneering research to defeat dementia. This milestone highlights just how supportive people in the Eastern region have been and how willing they are to give their time to volunteer for studies. We hope that people across the region will continue to sign up to volunteer and inspire their friends and family to do it too. Dementia is a heartbreaking condition but research can make progress for everyone affected.”

Dr Louise Walker, Research Officer at Alzheimer’s Society, said

“It is great to see that so many local people are signing up to Join Dementia Research. Their generosity will help us to make real progress towards finding new treatments and understanding more about the causes of dementia. The more people who get involved in research, the stronger these studies are. We encourage anyone who may be interested in taking part to sign up, including people affected by dementia and their families. This service empowers people to be part of the crucial search for better care today and a cure for the future.”


Lady-LookingatleafletIf you would like to find out more or get involved to help researchers try and beat dementia visit www.joindementiaresearch.nihr.ac.uk or call one of the charity helpline numbers:

Alzheimer Scotland: 0808 808 3 000
Alzheimer’s Research UK: 0300 1115111
Alzheimer’s Society: 0300 2221122