Brief questionnaire for carers of people with mild dementia
Are you a carer of someone with mild dementia?
A study entitled Validation of a Tool to Assess Daily Activities, is looking at changes in the motivation and performance of activities of daily living in people with memory problems (specifically those with a diagnosis of mild dementia). This is then analysed against the results of the wellbeing of both the carer and the person with dementia. This research is assessed through questionnaires completed by the carers of the people with dementia.
We got in touch with Clarissa Giebel, the Chief Investigator of the study to find out more.
What’s the main purpose of the study?
I’m looking at how the initiative to perform activities, so whether the person with dementia is motivated to do anything, or the actual problems in performing daily activities are related to carer wellbeing, and also how these are related to the wellbeing of the person with dementia.
How are you investigating that?
I’ve developed a more in-depth questionnaire for the carers of people with dementia, to see which activities the person with dementia struggles with. So for example, usually people just ask ‘Does someone have problems with going shopping?’, so what I’ve done is break this down, so if carers say ‘yes, my relative has problems with going shopping’, then there are some sub questions, for example ‘Does the person with dementia get lost in the aisles or forgets where items are placed in the shop or forgets what’s already in the trolley?’; it is really about breaking that down a bit more.
How do you assess their wellbeing?
It’s a standardised questionnaire. So for instance, the wellbeing of the person with dementia is assessed using the Quality of Life in Alzheimer’s Disease Scale. And I’ve got two questionnaires for the carer where they rate their levels of burden and their own wellbeing.
The questionnaire includes questions about whether the carer has noticed any changes in the motivation to perform activities (such as wanting to engage in hobbies) and in the actual performance (engaging in hobbies) in the person they care for. There are also some questions on the carer’s wellbeing and on the quality of life of the person they care for.
How it works
The carer is required to complete a brief paper-based questionnaire. Participants are provided with a stamped addressed envelope to return the completed questionnaire back to the Study Team. Filling in the questionnaire should last between 20 and 30 minutes.
All of the information gathered from the questionnaire will be anonymous and kept strictly confidential.
Hopes from the outcomes of the study
By gathering the results about the problems that the person with dementia may experience when performing everyday activities, the research team hope that with this information new interventions can be designed that will help make the lives of both people with memory problems and their carers more independent and less stressful. Participants can also receive information about the overall findings of the study.