#24DaysOfDementiaResearch – The SHAPED Study
We are now at the end of #24DaysOfDementiaResearch, profiling one research study each day that is available on Join Dementia Research – the new online service that connects volunteers with researchers around the country.
Today’s study will look into the often distressing symptom that affects up to two million people in the UK – visual hallucinations.
Aims of the Study
We have looked previously at studies into hallucinations, which are common to people with dementia.
Researchers are now broadening their work into more conditions that exhibit hallucinations – such as eye disease and Parkinson’s Disease.
People who suffer with hallucinations need specific support from the health service, and this study aims to produce guidelines and policies for medical professionals.
If you have visual hallucinations, now or in the future, you may be able to make use of the guidelines developed.
Interested in taking part…
If you would like to take part, you must be aged over 60, and have a diagnosis of dementia, Parkinson’s disease, or eye disease.
You do not have to have visual hallucinations or a study partner to take part. You cannot take part if you have visual hallucinations associated with schizophrenia, narcolepsy or epilepsy
Researchers will meet you at a time and place convenient for you, such as your home or local research centre.
At the visit they will ask you detailed questions about your health and experiences and carry out simple assessments on your vision, memory and mobility.
They would also like to speak to someone who knows you well, such as a spouse, relative, close friend or carer.
The entire visit should take no longer than 2 ½ hours. If at any point you feel tired, we can take extra breaks.
Similar visits will take place 9- and 18-months after the first visit. Researchers will also telephone you and your study partner around every 3 months over 21 months (5 times in total) to ask you a brief series of questions.
These telephone calls will take no longer than 15 minutes.
Check your eligibility for this, and other studies, by signing up with ‘Join dementia research’. It’s easy, free, and you can find out more by clicking the link on the right.
Let us know!
We always want to hear from people taking part in ‘Join dementia research’ studies!
Do you find it rewarding to take part in research? What would you say to others considering signing up with Join dementia research?
Merry Christmas from everyone at Join Dementia Research!