1,000 people in South West England signed up to Join Dementia Research
The South West is celebrating a key milestone with 1,000 volunteers signed up to Join Dementia Research.
Promoted locally by the NIHR Clinical Research Network: South West Peninsula, awareness about Join Dementia Research has been raised since the February launch at key research-related events and through NHS hospitals, GP practices, community pharmacies and dementia care homes, support forums, Alzheimer’s Research UK and Alzheimer’s Society.
Dr Ray Sheridan, Clinical Research Lead for the NIHR Clinical Research Network: South West Peninsula, said:
“There are currently 15 dementia research studies being conducted in the South West. We are always grateful to the patients, care givers and healthy members of the public who volunteer to take part in these studies so that we can improve the quality of life of people diagnosed with this condition and their families.
Dementia is increasingly touching more of us and research gives hope. The prevalence of dementia in Devon, Cornwall and Somerset is 0.74% of the population compared with 0.57% nationally.”
Senior Research Practitioner Nicola Walker at the Royal Devon & Exeter hospital cannot speak highly enough about Join Dementia Research, saying:
“With Join Dementia Research I was able to recruit the first patient to a study within 11 days of approval to open that study. It was a straight forward process because the Join Dementia Research service provides a register of volunteers who don’t mind being approached to take part in studies. Matching the volunteers with studies made the 30-day first recruit target very manageable.”
Nicola appreciated this resource because this is the first time she is the Principal Investigator for a study. She added:
“On the day approval came through for us to locally open the study I emailed four people registered with Join Dementia Research and received a response from two of them within 24 hours who both agreed to participate. It is great to be able to offer people the opportunity to take part in a range of dementia studies requiring a range of commitment.”
This particular study is looking at detecting susceptibility genes for late-onset Alzheimer’s disease and involves one home visit by two researchers to carry out cognitive testing, a semi-structured interview and taking a blood sample.”
The Royal Devon & Exeter NHS Foundation Trust and Devon Partnership NHS Trust work together as the Devon Dementia Collaboration to set up and deliver dementia research studies.
Devon Partnership Trust Research & Delivery Manager, Tobit Emmens said:
“Recruiting participants for the dementia research studies we are running is a big challenge. At the same time, many people are looking for studies to contribute to and take part in, but don’t know where to find out about them. With Join Dementia Research, everybody now has that chance to see what dementia research is taking place and enables them to connect to researchers and to participate in studies.”